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Informing study participants of research results: an ethical imperative.
Fernandez CV, Kodish E, Weijer C. Fernandez CV, et al. IRB. 2003 May-Jun;25(3):12-9. IRB. 2003. PMID: 14569989 No abstract available.
The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.
Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Gao J, Kodish E. Fernandez CV, et al. Pediatr Blood Cancer. 2007 Apr;48(4):441-6. doi: 10.1002/pbc.20766. Pediatr Blood Cancer. 2007. PMID: 16425279
Letter or e-mail was a satisfactory means to return results described as good or neutral (66% parents, 100% adolescents) but more participants wished face-to-face disclosure of results with negative implications (50% parents, 60% adolescents). ...
Letter or e-mail was a satisfactory means to return results described as good or neutral (66% parents, 100% adolescents) but more par …
Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.
Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz RD, Barfield RC, Baker JN, Santor D, Weijer C, Kodish E. Fernandez CV, et al. J Clin Oncol. 2009 Feb 20;27(6):878-83. doi: 10.1200/JCO.2008.18.5223. Epub 2009 Jan 21. J Clin Oncol. 2009. PMID: 19164211 Free PMC article. Clinical Trial.
For positive results, most wanted a letter or e-mail summary (n = 238; 58.2%) or a phone call followed by a letter (n = 100; 24.4%). ...
For positive results, most wanted a letter or e-mail summary (n = 238; 58.2%) or a phone call followed by a letter (n = 100; 24.4%). …
Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.
Fernandez CV, Kodish E, Taweel S, Shurin S, Weijer C; Children's Oncology Group. Fernandez CV, et al. Cancer. 2003 Jun 1;97(11):2904-9. doi: 10.1002/cncr.11391. Cancer. 2003. PMID: 12767106
Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group.
Fernandez CV, Kodish E, Shurin S, Weijer C; Children's Oncology Group. Fernandez CV, et al. J Pediatr Hematol Oncol. 2003 Sep;25(9):704-8. doi: 10.1097/00043426-200309000-00006. J Pediatr Hematol Oncol. 2003. PMID: 12972805
Children, research, and guinea pigs: reflections on a metaphor.
Gordon EJ, Yamokoski AH, Kodish E. Gordon EJ, et al. IRB. 2006 Sep-Oct;28(5):12-9. IRB. 2006. PMID: 17152130 No abstract available.
Conducting empirical research on informed consent: challenges and questions.
Sachs GA, Hougham GW, Sugarman J, Agre P, Broome ME, Geller G, Kass N, Kodish E, Mintz J, Roberts LW, Sankar P, Siminoff LA, Sorenson J, Weiss A. Sachs GA, et al. IRB. 2003 Sep-Oct;Suppl 25(5):S4-S10. IRB. 2003. PMID: 14870730 No abstract available.
Children in research: new perspectives and practices for informed consent.
Broome ME, Kodish E, Geller G, Siminoff LA. Broome ME, et al. IRB. 2003 Sep-Oct;Suppl 25(5):S20-S23. IRB. 2003. PMID: 14870734 No abstract available.
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