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Burden of illness: direct and indirect costs among persons with hemophilia A in the United States.
Zhou ZY, Koerper MA, Johnson KA, Riske B, Baker JR, Ullman M, Curtis RG, Poon JL, Lou M, Nichol MB. Zhou ZY, et al. Among authors: nichol mb. J Med Econ. 2015 Jun;18(6):457-65. doi: 10.3111/13696998.2015.1016228. Epub 2015 Mar 9. J Med Econ. 2015. PMID: 25660324 Free article.
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Observational data were obtained from HUGS-Va, a multi-center study from six federally supported hemophilia treatment centers (HTCs). .. …
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Obs …
Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates.
Chen CX, Baker JR, Nichol MB. Chen CX, et al. Among authors: nichol mb. Value Health. 2017 Sep;20(8):1074-1082. doi: 10.1016/j.jval.2017.04.017. Epub 2017 Jun 17. Value Health. 2017. PMID: 28964439 Free article.
OBJECTIVES: To determine US societal burden of illness, including direct and indirect costs and annual bleed rate (ABR), for persons with hemophilia B (HB), a rare and debilitating genetic disorder, and to examine associations of hemophilia severity and treatment re …
OBJECTIVES: To determine US societal burden of illness, including direct and indirect costs and annual bleed rate (ABR), for persons with …
Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.
Curtis R, Baker J, Riske B, Ullman M, Niu X, Norton K, Lou M, Nichol MB. Curtis R, et al. Among authors: nichol mb. Am J Hematol. 2015 Dec;90 Suppl 2:S11-6. doi: 10.1002/ajh.24218. Am J Hematol. 2015. PMID: 26619192 Free article.
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young adults with hemophilia. However, few published reports specifically examine health status indicators in this population. To remedy thi …
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young a …
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: nichol mb. Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12. Haemophilia. 2019. PMID: 30861270
Years of education contributed 0.34% in the PROBE score. Age and haemophilia diagnosis contributed 3.42% and 22.42% of the PROBE score. CONCLUSIONS: The results demonstrate that the PROBE questionnaire is valid to implement for assessing health status among patients with …
Years of education contributed 0.34% in the PROBE score. Age and haemophilia diagnosis contributed 3.42% and 22.42% of the PROBE scor …
Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol MB, Germini F, O'Mahony B, Page D, Stonebraker JS, Skinner MW, Iorio A. Chai-Adisaksopha C, et al. Among authors: nichol mb. Haemophilia. 2021 Jan;27 Suppl 1:17-24. doi: 10.1111/hae.14105. Epub 2020 Sep 1. Haemophilia. 2021. PMID: 32870546
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in people with non-severe (mild and moderate) haemophilia. ...CONCLUSION: People affected by mild or moderate haemophilia report a sig …
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in peopl …
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Chai-Adisaksopha C, et al. Among authors: nichol mb. BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900. BMJ Open. 2018. PMID: 30093520 Free PMC article.
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. Participants were invited through non-governmental patient organisations in 21 countries between 01/27/2016 and 02/23/2017. ...CONCLUSIO …
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disord …
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: nichol mb. Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6. Haemophilia. 2019. PMID: 30520534
METHODS: The PROBE questionnaire covers four domains and is comprised of 29 questions. People with haemophilia (PWH) and participants without bleeding disorder were invited to participate in this study. ...On the questions common to PWH and participants without bleeding di …
METHODS: The PROBE questionnaire covers four domains and is comprised of 29 questions. People with haemophilia (PWH) and participants …
Longitudinal changes in health-related quality of life for chronic diseases: an example in hemophilia A.
Poon JL, Doctor JN, Nichol MB. Poon JL, et al. Among authors: nichol mb. J Gen Intern Med. 2014 Aug;29 Suppl 3(Suppl 3):S760-6. doi: 10.1007/s11606-014-2893-y. J Gen Intern Med. 2014. PMID: 25029975 Free PMC article.
BACKGROUND: Patients with well-managed rare chronic diseases such as hemophilia maintain a stable health state and health-related quality of life (HrQoL) that may be affected by acute events. ...OBJECTIVES: To demonstrate the application of MVML modelling in a longitudinal …
BACKGROUND: Patients with well-managed rare chronic diseases such as hemophilia maintain a stable health state and health-related qua …