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HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).
Carlozzi NE, Schilling SG, Lai JS, Paulsen JS, Hahn EA, Perlmutter JS, Ross CA, Downing NR, Kratz AL, McCormack MK, Nance MA, Quaid KA, Stout JC, Gershon RC, Ready RE, Miner JA, Barton SK, Perlman SL, Rao SM, Frank S, Shoulson I, Marin H, Geschwind MD, Dayalu P, Goodnight SM, Cella D. Carlozzi NE, et al. Among authors: miner ja. Qual Life Res. 2016 Oct;25(10):2441-2455. doi: 10.1007/s11136-016-1386-3. Epub 2016 Aug 13. Qual Life Res. 2016. PMID: 27522213 Free PMC article.
New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).
Carlozzi NE, Downing NR, McCormack MK, Schilling SG, Perlmutter JS, Hahn EA, Lai JS, Frank S, Quaid KA, Paulsen JS, Cella D, Goodnight SM, Miner JA, Nance MA. Carlozzi NE, et al. Among authors: miner ja. Qual Life Res. 2016 Oct;25(10):2403-2415. doi: 10.1007/s11136-016-1354-y. Epub 2016 Jul 8. Qual Life Res. 2016. PMID: 27393121 Free PMC article.
Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury.
Carlozzi NE, Brickell TA, French LM, Sander A, Kratz AL, Tulsky DS, Chiaravalloti ND, Hahn EA, Kallen M, Austin AM, Miner JA, Lange RT. Carlozzi NE, et al. Among authors: miner ja. J Rehabil Res Dev. 2016;53(6):669-680. doi: 10.1682/JRRD.2015.07.0136. J Rehabil Res Dev. 2016. PMID: 27997672 Free PMC article.
Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Fatigue and Sleep Disturbance Item Banks.
Carlozzi NE, Ianni PA, Tulsky DS, Brickell TA, Lange RT, French LM, Cella D, Kallen MA, Miner JA, Kratz AL. Carlozzi NE, et al. Among authors: miner ja. Arch Phys Med Rehabil. 2019 Apr;100(4S):S102-S109. doi: 10.1016/j.apmr.2018.05.020. Epub 2018 Jun 20. Arch Phys Med Rehabil. 2019. PMID: 29932884 Free PMC article.
63 results