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Page 1
Navigating data sharing in research.
Lewis ACF, Clayton EW, Bangash H, Bland HT, Bonini KE, Cimino JJ, Connolly JJ, Freimuth RR, Fullerton SM, Hakonarson H, Holm IA, Jarvik GP, Khan A, Kiryluk K, Linder JE, Luo Y, Lynch JA, Mittendorf KF, Pacheco JA, Rasmussen LV, Rose SL, Rowley R, Sharp RR, Walunas TL, Wei WQ, Weng C, Sabatello M. Lewis ACF, et al. Am J Hum Genet. 2026 Jun 4;113(6):1159-1167. doi: 10.1016/j.ajhg.2026.04.004. Epub 2026 Apr 29. Am J Hum Genet. 2026. PMID: 42061409 Free PMC article. Review.
Sharing biomedical research data can accelerate scientific discovery, leading funders and journals to increasingly mandate sharing. ...These decisions balanced immediate protection and long-term scientific benefits for relevant populations. Participant …
Sharing biomedical research data can accelerate scientific discovery, leading funders and journals to increasingly mand …
Navigating open data sharing and privacy in the age of clinical AI research: from reidentification to pseudo-reidentification.
Hallaj S, Heinke A, Kalaw FGP, Gim N, Blazes M, Owen J, Dysinger E, Benton ES, Cordier BA, Evans NG, Li-Pook-Than J, Snyder MP, Nebeker C, Zangwill LM, Baxter SL, McWeeney S, Lee CS, Lee AY, Patel B; AI-READI Consortium. Hallaj S, et al. EClinicalMedicine. 2025 Dec 29;91:103729. doi: 10.1016/j.eclinm.2025.103729. eCollection 2026 Jan. EClinicalMedicine. 2025. PMID: 41542222 Free PMC article. Review.
Sharing clinical research data is key for increasing the pace of medical discoveries that improve human health. ...Here, we discuss the challenges AI approaches create that are blurring the lines between identifiable, and non-identifiable data. We pres …
Sharing clinical research data is key for increasing the pace of medical discoveries that improve human health. ...Here …
Genomic Data Sharing: Navigating The Ethical Issues In Collaborative Research Relationships Between The Global North-South.
Sebatta DE, Kyaddondo D, Barugahare J, Kaawa-Mafigiri D, Singh S, Mwaka E. Sebatta DE, et al. Afr J Bioeth. 2024;2024:10.58177/ajb240007. doi: 10.58177/ajb240007. Epub 2024 Sep 6. Afr J Bioeth. 2024. PMID: 40421257 Free PMC article.
BACKGROUND: In recent years, Africa has seen a significant growth in genomic research, leading to the sharing of participant data between researchers in Africa and across the globe.The study aimed to investigate the ethical issues that impacted the …
BACKGROUND: In recent years, Africa has seen a significant growth in genomic research, leading to the sharing of participant …
Research on healthcare data sharing in the context of digital platforms considering the risks of data breaches.
Bai S, Zheng J, Wu W, Gao D, Gu X. Bai S, et al. Front Public Health. 2024 Nov 6;12:1438579. doi: 10.3389/fpubh.2024.1438579. eCollection 2024. Front Public Health. 2024. PMID: 39568601 Free PMC article.
However, medical institutions often exhibit reluctance toward data sharing due to apprehensions regarding data security and privacy safeguards. To navigate this conundrum, our research introduces and empirically validates a model grounded in evo …
However, medical institutions often exhibit reluctance toward data sharing due to apprehensions regarding data security …
Ethical Considerations for Clinical Data Sharing in Craniofacial Research: Recommendations From a Multidisciplinary Working Group.
Kraft SA, Stueckle L, Bogart KR, Crerand C, Evans KN, Fullerton SM, Johns A, Klauber E, Kinter SL, McKinney CM, Mendillo A, Prepotente A, Schefer A, Stock NM, Tumblin M, Heike CL. Kraft SA, et al. Cleft Palate Craniofac J. 2025 Dec 2:10556656251398916. doi: 10.1177/10556656251398916. Online ahead of print. Cleft Palate Craniofac J. 2025. PMID: 41329789 Free PMC article.
These domains address: (1) research team communication with participants, (2) data collection and protections, (3) data governance, (4) education for researchers, and (5) remaining research gaps. Recommendations highlight the importance of prior …
These domains address: (1) research team communication with participants, (2) data collection and protections, (3) data …
Navigating Social Media in #Ophthalmology.
Tsui E, Rao RC. Tsui E, et al. Ophthalmology. 2019 Jun;126(6):779-782. doi: 10.1016/j.ophtha.2019.02.015. Ophthalmology. 2019. PMID: 31122357 Free PMC article. No abstract available.
Continuous glucose monitoring with data sharing in older adults: A qualitative study.
Allen NA, Grigorian EG, Mansfield K, Berg CA, Litchman ML. Allen NA, et al. J Clin Nurs. 2023 Oct;32(19-20):7483-7494. doi: 10.1111/jocn.16808. Epub 2023 Jun 22. J Clin Nurs. 2023. PMID: 37345621
BACKGROUND: The SHARE plus intervention includes continuous glucose monitoring with a data sharing app that allows care partners to view glucose data on a smartphone and receive alerts. ...Care partners (n = 10) used a data-sharing app. The SHAR …
BACKGROUND: The SHARE plus intervention includes continuous glucose monitoring with a data sharing app that allows care partne …
Cross-border data sharing for research in Africa: An analysis of the data protection and research ethics requirements in 12 jurisdictions.
Staunton C, Edgcumbe A, Abdulrauf L, Gooden A, Ogendi P, Thaldar D. Staunton C, et al. Res Sq [Preprint]. 2024 Apr 15:rs.3.rs-4217849. doi: 10.21203/rs.3.rs-4217849/v1. Res Sq. 2024. Update in: J Law Biosci. 2025 Mar 19;12(1):lsaf002. doi: 10.1093/jlb/lsaf002. PMID: 38699320 Free PMC article. Updated. Preprint.
Many of these statutes have stricter requirements when sharing personal data across borders. Consequently, the cross-border sharing of health data that includes genetic data requires careful navigation of the pertinent data protect …
Many of these statutes have stricter requirements when sharing personal data across borders. Consequently, the cross-border …
966 results