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Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study.
Buckner TW, Witkop M, Guelcher C, Sidonio R, Kessler CM, Clark DB, Owens W, Frick N, Iyer NN, Cooper DL. Buckner TW, et al. Among authors: frick n. Eur J Haematol. 2018 Jun;100(6):592-602. doi: 10.1111/ejh.13055. Epub 2018 Apr 11. Eur J Haematol. 2018. PMID: 29505680
INTRODUCTION: Health-related quality of life (HRQoL) is impaired in patients with hemophilia; however, the impact in mild/moderate hemophilia B and affected women is not well characterized. ...Adults with moderate hemophilia reported poorer health status (med …
INTRODUCTION: Health-related quality of life (HRQoL) is impaired in patients with hemophilia; however, the impact in mild/moderate …
Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Cutter S, Molter D, Dunn S, Hunter S, Peltier S, Haugstad K, Frick N, Holot N, Cooper DL. Cutter S, et al. Among authors: frick n. Eur J Haematol. 2017 Apr;98 Suppl 86:18-24. doi: 10.1111/ejh.12851. Eur J Haematol. 2017. PMID: 28319337 Clinical Trial.
The findings revealed that hemophilia had an impact for adults with moderate/severe hemophilia and caregivers of children with hemophilia. ...The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study evaluated the …
The findings revealed that hemophilia had an impact for adults with moderate/severe hemophilia and caregivers of children with …
Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Baumann K, Hernandez G, Witkop M, Peltier S, Dunn S, Cutter S, Frick N, Haugstad K, Guelcher C, Frey MJ, Rotellini D, Clark DB, Iyer NN, Cooper DL. Baumann K, et al. Among authors: frick n. Eur J Haematol. 2017 Apr;98 Suppl 86:25-34. doi: 10.1111/ejh.12852. Eur J Haematol. 2017. PMID: 28319336 Clinical Trial.
The psychosocial impact of hemophilia on activities was recently investigated in the Hemophilia Experiences, Results and Opportunities (HERO) study (675 people with hemophilia and 561 caregivers of children with hemophilia in 10 countries). The impact …
The psychosocial impact of hemophilia on activities was recently investigated in the Hemophilia Experiences, Results and Oppor …
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Buckner TW, Witkop M, Guelcher C, Frey MJ, Hunter S, Peltier S, Recht M, Walsh C, Kessler CM, Owens W, Clark DB, Frick N, Rice M, Iyer NN, Holot N, Cooper DL, Sidonio R Jr. Buckner TW, et al. Among authors: frick n. Eur J Haematol. 2017 Apr;98 Suppl 86:5-17. doi: 10.1111/ejh.12854. Eur J Haematol. 2017. PMID: 28319338 Clinical Trial.
The original Hemophilia Experiences, Results and Opportunities (HERO) qualitative study evaluated the needs of people with hemophilia A or B in multiple countries; however, a majority of participants had the more common moderate-severe hemophilia A. The B-HER …
The original Hemophilia Experiences, Results and Opportunities (HERO) qualitative study evaluated the needs of people with hemophi
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Chai-Adisaksopha C, et al. Among authors: frick n. BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900. BMJ Open. 2018. PMID: 30093520 Free PMC article.
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. ...CONCLUSIONS: The results of this study suggest that PROBE is a valid questionnaire for evaluating PROs in people with haemophilia
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disord …
Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.
Witkop M, Guelcher C, Forsyth A, Hawk S, Curtis R, Kelley L, Frick N, Rice M, Rosu G, Cooper DL. Witkop M, et al. Among authors: frick n. Am J Hematol. 2015 Dec;90 Suppl 2:S3-10. doi: 10.1002/ajh.24220. Am J Hematol. 2015. PMID: 26619194 Free article. Clinical Trial.
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate to severe hemophilia and was led by a multidisciplinary international advisory board. ...A majority of young adults reported that …
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate …
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: frick n. Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12. Haemophilia. 2019. PMID: 30861270
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region controlling for haemophilia diagnosis, age group and levels of educations. ...Age and haemophilia diagnosis contributed 3.42% …
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region …
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: frick n. Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6. Haemophilia. 2019. PMID: 30520534
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing health status in patients with haemophilia and participants without bleeding disorders. ...For haemophilia-related questions (T1 …
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing he …
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