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Page 1
Comprehensive care for hemophilia and other inherited bleeding disorders.
Page D. Page D. Transfus Apher Sci. 2019 Oct;58(5):565-568. doi: 10.1016/j.transci.2019.08.005. Epub 2019 Aug 6. Transfus Apher Sci. 2019. PMID: 31427262 Review.
The World Federation of Hemophilia (WFH) states in its Guidelines for the Management of Hemophilia, Second Edition [1], that people with hemophilia are best managed in a comprehensive care setting. That team is typically comprised of a core group including a …
The World Federation of Hemophilia (WFH) states in its Guidelines for the Management of Hemophilia, Second Edition [1], that p …
Parent testimonial: A caregiver whose son with inhibitors has been receiving emicizumab.
Page D. Page D. Transfus Apher Sci. 2019 Oct;58(5):563-564. doi: 10.1016/j.transci.2019.08.004. Epub 2019 Aug 9. Transfus Apher Sci. 2019. PMID: 31706912 Review.
The haemophilia certification system in Canada.
Matino D, Teitel J, Page D, Keepanasseril A, Iorio A, Walker I. Matino D, et al. Among authors: page d. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):e531-41. doi: 10.2450/2014.0032-14s. Blood Transfus. 2014. PMID: 24922284 Free PMC article. Review. No abstract available.
Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?
Pierce GF, Kaczmarek R, Noone D, O'Mahony B, Page D, Skinner MW. Pierce GF, et al. Among authors: page d. Haemophilia. 2020 Nov;26(6):931-933. doi: 10.1111/hae.14131. Epub 2020 Sep 10. Haemophilia. 2020. PMID: 32909632 No abstract available.
Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders.
Arya S, Wilton P, Page D, Boma-Fischer L, Floros G, Dainty KN, Winikoff R, Sholzberg M. Arya S, et al. Among authors: page d. PLoS One. 2020 Feb 20;15(2):e0229099. doi: 10.1371/journal.pone.0229099. eCollection 2020. PLoS One. 2020. PMID: 32078655 Free PMC article.
METHODS: A healthcare provider survey comprising 24 questions was developed, tested, and subsequently disseminated online with recruitment to all members of The Association of Hemophilia Clinic Directors of Canada (N = 73), members of the Canadian Association of Nurses in …
METHODS: A healthcare provider survey comprising 24 questions was developed, tested, and subsequently disseminated online with recruitment t …
Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol MB, Germini F, O'Mahony B, Page D, Stonebraker JS, Skinner MW, Iorio A. Chai-Adisaksopha C, et al. Among authors: page d. Haemophilia. 2020 Sep 1. doi: 10.1111/hae.14105. Online ahead of print. Haemophilia. 2020. PMID: 32870546
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in people with non-severe (mild and moderate) haemophilia. ...CONCLUSION: People affected by mild or moderate haemophilia report a sig …
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in peopl …
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: page d. Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12. Haemophilia. 2019. PMID: 30861270
Years of education contributed 0.34% in the PROBE score. Age and haemophilia diagnosis contributed 3.42% and 22.42% of the PROBE score. CONCLUSIONS: The results demonstrate that the PROBE questionnaire is valid to implement for assessing health status among patients with …
Years of education contributed 0.34% in the PROBE score. Age and haemophilia diagnosis contributed 3.42% and 22.42% of the PROBE scor …
From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies.
Wiley RE, Khoury CP, Snihur AWK, Williams M, Page D, Graham N, Laudenbach L, Milne-Wren C, Stoffman JM. Wiley RE, et al. Among authors: page d. Haemophilia. 2019 May;25(3):433-440. doi: 10.1111/hae.13754. Epub 2019 Apr 23. Haemophilia. 2019. PMID: 31016823 Free PMC article.
INTRODUCTION: Haemophilia A is a chronic disease requiring frequent intravenous infusions of recombinant factor VIII. ...These considerations may help to inform decision-making for policymakers and health systems around the true value of new therapies entering the haemo …
INTRODUCTION: Haemophilia A is a chronic disease requiring frequent intravenous infusions of recombinant factor VIII. ...These consid …
The 1st WFH Gene Therapy Round Table: Understanding the landscape and challenges of gene therapy for haemophilia around the world.
Pierce GF, Coffin D; Members of the WFH Gene Therapy Round Table Program Committee and Organizing Committee. Pierce GF, et al. Haemophilia. 2019 Mar;25(2):189-194. doi: 10.1111/hae.13673. Epub 2019 Jan 3. Haemophilia. 2019. PMID: 30604914 Review.
In this first in a series of round table meetings, the 1st World Federation of Hemophilia Gene Therapy Round Table was convened to initiate a global dialogue on the expected challenges and opportunities that a disruptive therapy, such as gene therapy, will bring to the …
In this first in a series of round table meetings, the 1st World Federation of Hemophilia Gene Therapy Round Table was convened to in …
Setting the scene: Historical overview of challenges and what led to advances in comprehensive care in developed countries, the Canadian experience.
Page D. Page D. Haemophilia. 2020 Apr;26 Suppl 3:4-5. doi: 10.1111/hae.13885. Haemophilia. 2020. PMID: 32356349
The history of the development of comprehensive care for hemophilia and other inherited bleeding disorders in Canada has been long and full of challenges. From limited in-patient treatment with plasma and cryoprecipitate in a few major centres in the 1950s and 1960s, a net …
The history of the development of comprehensive care for hemophilia and other inherited bleeding disorders in Canada has been long an …
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