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Page 1
Access to community care for people with dementia and their informal carers : Case vignettes for a European comparison of structures and common pathways to formal care.
Bieber A, Stephan A, Verbeek H, Verhey F, Kerpershoek L, Wolfs C, de Vugt M, Woods RT, Røsvik J, Selbaek G, Sjölund BM, Wimo A, Hopper L, Irving K, Marques MJ, Gonçalves-Pereira M, Portolani E, Zanetti O, Meyer G. Bieber A, et al. Among authors: portolani e. Z Gerontol Geriatr. 2018 Jul;51(5):530-536. doi: 10.1007/s00391-017-1266-7. Epub 2017 Jun 14. Z Gerontol Geriatr. 2018. PMID: 28616816 English.
A comparison of self and proxy quality of life ratings for people with dementia and their carers: a European prospective cohort study.
O'Shea E, Hopper L, Marques M, Gonçalves-Pereira M, Woods B, Jelley H, Verhey F, Kerpershoek L, Wolfs C, de Vugt M, Stephan A, Bieber A, Meyer G, Wimo A, Michelet M, Selbaek G, Portolani E, Zanetti O, Irving K; Actifcare Consortium. O'Shea E, et al. Among authors: portolani e. Aging Ment Health. 2020 Jan;24(1):162-170. doi: 10.1080/13607863.2018.1517727. Epub 2018 Nov 1. Aging Ment Health. 2020. PMID: 30381955
Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study.
Kerpershoek L, de Vugt M, Wolfs C, Jelley H, Orrell M, Woods B, Stephan A, Bieber A, Meyer G, Engedal K, Selbaek G, Handels R, Wimo A, Hopper L, Irving K, Marques M, Gonçalves-Pereira M, Portolani E, Zanetti O, Verhey F; Actifcare Consortium. Kerpershoek L, et al. Among authors: portolani e. BMC Health Serv Res. 2016 Aug 23;16(1):423. doi: 10.1186/s12913-016-1672-3. BMC Health Serv Res. 2016. PMID: 27550084 Free PMC article.
Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health.
Janssen EP, de Vugt M, Köhler S, Wolfs C, Kerpershoek L, Handels RL, Orrell M, Woods B, Jelley H, Stephan A, Bieber A, Meyer G, Engedal K, Selbaek G, Wimo A, Irving K, Hopper L, Gonçalves-Pereira M, Portolani E, Zanetti O, Verhey FR. Janssen EP, et al. Among authors: portolani e. Aging Ment Health. 2017 Jan;21(1):49-57. doi: 10.1080/13607863.2016.1255716. Epub 2016 Nov 21. Aging Ment Health. 2017. PMID: 27869480
Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries.
Broda A, Bieber A, Meyer G, Hopper L, Joyce R, Irving K, Zanetti O, Portolani E, Kerpershoek L, Verhey F, Vugt M, Wolfs C, Eriksen S, Røsvik J, Marques MJ, Gonçalves-Pereira M, Sjölund BM, Woods B, Jelley H, Orrell M, Stephan A; ActifCare Consortium. Broda A, et al. Among authors: portolani e. BMC Health Serv Res. 2017 Aug 3;17(1):518. doi: 10.1186/s12913-017-2456-0. BMC Health Serv Res. 2017. PMID: 28774307 Free PMC article.
Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice.
Kerpershoek L, de Vugt M, Wolfs C, Woods B, Jelley H, Orrell M, Stephan A, Bieber A, Meyer G, Selbaek G, Handels R, Wimo A, Hopper L, Irving K, Marques M, Gonçalves-Pereira M, Portolani E, Zanetti O, Verhey F; Actifcare Consortium. Kerpershoek L, et al. Among authors: portolani e. Aging Ment Health. 2018 Jul;22(7):897-902. doi: 10.1080/13607863.2017.1390732. Epub 2017 Oct 25. Aging Ment Health. 2018. PMID: 29068697
Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries.
Stephan A, Bieber A, Hopper L, Joyce R, Irving K, Zanetti O, Portolani E, Kerpershoek L, Verhey F, de Vugt M, Wolfs C, Eriksen S, Røsvik J, Marques MJ, Gonçalves-Pereira M, Sjölund BM, Jelley H, Woods B, Meyer G; Actifcare Consortium. Stephan A, et al. Among authors: portolani e. BMC Geriatr. 2018 Jun 4;18(1):131. doi: 10.1186/s12877-018-0816-1. BMC Geriatr. 2018. PMID: 29866102 Free PMC article.
Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study.
Handels RLH, Sköldunger A, Bieber A, Edwards RT, Gonçalves-Pereira M, Hopper L, Irving K, Jelley H, Kerpershoek L, Marques MJ, Meyer G, Michelet M, Portolani E, Røsvik J, Selbaek G, Stephan A, de Vugt M, Wolfs C, Woods B, Zanetti O, Verhey F, Wimo A; Actifcare consortium. Handels RLH, et al. Among authors: portolani e. J Alzheimers Dis. 2018;66(3):1027-1040. doi: 10.3233/JAD-180275. J Alzheimers Dis. 2018. PMID: 30372674
Impact of Untimely Access to Formal Care on Costs and Quality of Life in Community Dwelling People with Dementia.
Janssen N, Handels RL, Sköldunger A, Woods B, Jelley H, Edwards RT, Orrell M, Selbæk G, Røsvik J, Gonçalves-Pereira M, Marques MJ, Zanetti O, Portolani E, Irving K, Hopper L, Meyer G, Bieber A, Stephan A, Kerpershoek L, Wolfs CAG, de Vugt ME, Verhey FRJ, Wimo A; Consortium Actifcare. Janssen N, et al. Among authors: portolani e. J Alzheimers Dis. 2018;66(3):1165-1174. doi: 10.3233/JAD-180531. J Alzheimers Dis. 2018. PMID: 30400096
Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study.
Kerpershoek L, Woods B, Wolfs C, Verhey F, Jelley H, Bieber A, Stephan A, Michelet M, Selbaek G, Handels R, Wimo A, Hopper L, Irving K, Marques MJ, Gonçalves-Pereira M, Portolani E, Zanetti O, de Vugt M; Actifcare Consortium. Kerpershoek L, et al. Among authors: portolani e. Aging Ment Health. 2020 Feb;24(2):272-279. doi: 10.1080/13607863.2018.1544215. Epub 2018 Dec 6. Aging Ment Health. 2020. PMID: 30518244
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