Privacy in the Genomic Era.
ACM Comput Surv. 2015.
PMID: 26640318
Free PMC article.
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Patient privacy in the genomic era.
Praxis (Bern 1994). 2014.
PMID: 24800770
Review.
Privacy and protection in the genomic era.
Nat Med. 2013.
PMID: 24013730
No abstract available.
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Patient privacy in the genomic era.
Praxis (Bern 1994). 2014 May 7;103(10):579-86. doi: 10.1024/1661-8157/a001657.
Praxis (Bern 1994). 2014.
PMID: 24800770
Free article.
Review.
However, this progress raises important privacy and ethical concerns that need to be addressed. Indeed, each genome is the ultimate identifier of its owner and, due to its nature, it contains highly personal and privacy-sensitive data. In this article, after …
However, this progress raises important privacy and ethical concerns that need to be addressed. Indeed, each genome is the ult …
Human genome sequencing in health and disease.
Annu Rev Med. 2012;63:35-61. doi: 10.1146/annurev-med-051010-162644.
Annu Rev Med. 2012.
PMID: 22248320
Free PMC article.
Review.
Following the "finished," euchromatic, haploid human reference genome sequence, the rapid development of novel, faster, and cheaper sequencing technologies is making possible the era of personalized human genomics. Personal diploid human genome sequenc …
Following the "finished," euchromatic, haploid human reference genome sequence, the rapid development of novel, faster, and cheaper s …
Privacy in the Genomic Era.
ACM Comput Surv. 2015 Sep;48(1):6. doi: 10.1145/2767007.
ACM Comput Surv. 2015.
PMID: 26640318
Free PMC article.
The problem of genome data privacy thus resides at the crossroads of computer science, medicine, and public policy. ...In doing so, we address some of the (sometimes erroneous) beliefs of this field and we report on a survey we conducted about genome data …
The problem of genome data privacy thus resides at the crossroads of computer science, medicine, and public policy. ...In doin …
Privacy and protection in the genomic era.
Nat Med. 2013 Sep;19(9):1073. doi: 10.1038/nm.3342.
Nat Med. 2013.
PMID: 24013730
No abstract available.
Research ethics in the post-genomic era.
Environ Mol Mutagen. 2013 Aug;54(7):599-610. doi: 10.1002/em.21804. Epub 2013 Aug 1.
Environ Mol Mutagen. 2013.
PMID: 23908016
Review.
In health science research there are traditional ethical considerations that are reasonably obvious, like balancing health benefits and health risks, autonomy mainly pursued by informed consent, and protecting privacy. Epidemiological studies applying new large-scale appro …
In health science research there are traditional ethical considerations that are reasonably obvious, like balancing health benefits and heal …
Ethical implications of epigenetics in the era of personalized medicine.
Clin Epigenetics. 2022 Mar 25;14(1):44. doi: 10.1186/s13148-022-01263-1.
Clin Epigenetics. 2022.
PMID: 35337378
Free PMC article.
Review.
The review covers ethical aspects such as how epigenetic information should impact patient autonomy and the ability to generate an intentional and voluntary decision, the measures of data protection related to privacy and confidentiality derived from epigenome studies (e.g …
The review covers ethical aspects such as how epigenetic information should impact patient autonomy and the ability to generate an intention …
Overview of personalized medicine in the disease genomic era.
BMB Rep. 2010 Oct;43(10):643-8. doi: 10.5483/BMBRep.2010.43.10.643.
BMB Rep. 2010.
PMID: 21034525
Free article.
Review.
Genomic tools such as sequence variation, transcription and, more recently, personal genome sequencing enable the precise prediction and treatment of disease. ...In addition, full application of personalized or genomic medicine requires dramatic changes in re …
Genomic tools such as sequence variation, transcription and, more recently, personal genome sequencing enable the precise pred …
Consent and Privacy in the Era of Precision Medicine and Biobanking Genomic Data.
Am J Law Med. 2020 May;46(2-3):167-187. doi: 10.1177/0098858820933493.
Am J Law Med. 2020.
PMID: 32659188
"Big Data represents a challenge that points to the need for collective and political approaches to self-protection rather than solely individual, atomistic approaches."- Anita Allen, "Protecting One's Own Privacy in a Big Data Economy"....
"Big Data represents a challenge that points to the need for collective and political approaches to self-protection rather than solely indiv …
Getting personal: Head and neck cancer management in the era of genomic medicine.
Head Neck. 2016 Apr;38 Suppl 1(Suppl 1):E2250-8. doi: 10.1002/hed.24132. Epub 2015 Aug 13.
Head Neck. 2016.
PMID: 25995036
Free PMC article.
Review.
METHODS: This article offers a primer to assist clinicians treating patients in anticipating and managing the inherent practical and ethical challenges of cancer care in the genomic era. RESULTS: Clinical applications of genomics for head and neck cancer are …
METHODS: This article offers a primer to assist clinicians treating patients in anticipating and managing the inherent practical and ethical …
Privacy and data management in the era of massively parallel next-generation sequencing.
Expert Rev Mol Diagn. 2011 Jun;11(5):457-9. doi: 10.1586/erm.11.34.
Expert Rev Mol Diagn. 2011.
PMID: 21707452
Free PMC article.
No abstract available.
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