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Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
Antommaria AHM, Brothers KB, Myers JA, Feygin YB, Aufox SA, Brilliant MH, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Li R, Ludman EJ, McCarty CA, McCormick JB, Mercaldo ND, Myers MF, Sanderson SC, Shrubsole MJ, Schildcrout JS, Williams JL, Smith ME, Clayton EW, Holm IA. Antommaria AHM, et al. AJOB Empir Bioeth. 2018 Jul-Sep;9(3):128-142. doi: 10.1080/23294515.2018.1505783. Epub 2018 Sep 21. AJOB Empir Bioeth. 2018. PMID: 30240342 Free PMC article. Clinical Trial.
BACKGROUND: The factors influencing parents' willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents' willingness to enroll their children, and their perceived benefits, concerns, and information needs under differ …
BACKGROUND: The factors influencing parents' willingness to enroll their children in biobanks are poorly understood. This study sough …
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Sanderson SC, Brothers KB, Mercaldo ND, Clayton EW, Antommaria AHM, Aufox SA, Brilliant MH, Campos D, Carrell DS, Connolly J, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Kaufman D, Kitchner TE, Li R, Ludman EJ, McCarty CA, McCormick JB, McManus VD, Myers MF, Scrol A, Williams JL, Shrubsole MJ, Schildcrout JS, Smith ME, Holm IA. Sanderson SC, et al. Am J Hum Genet. 2017 Mar 2;100(3):414-427. doi: 10.1016/j.ajhg.2017.01.021. Epub 2017 Feb 9. Am J Hum Genet. 2017. PMID: 28190457 Free PMC article. Clinical Trial.
Individuals participating in biobanks and other large research projects are increasingly asked to provide broad consent for open-ended research use and widespread sharing of their biosamples and data. ...Addressing potential participan
Individuals participating in biobanks and other large research projects are increasingly asked to provide broad consent …
Public and biobank participant attitudes toward genetic research participation and data sharing.
Lemke AA, Wolf WA, Hebert-Beirne J, Smith ME. Lemke AA, et al. Public Health Genomics. 2010;13(6):368-77. doi: 10.1159/000276767. Epub 2010 Jan 15. Public Health Genomics. 2010. PMID: 20805700 Free PMC article.
Research assessing attitudes toward consent processes for high-throughput genomic-wide technologies and widespread sharing of data is limited. In order to develop a better understanding of stakeholder views toward these issues, this cross
Research assessing attitudes toward consent processes for high-throughput genomic-wide technologies and widespread s
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW. Garrison NA, et al. Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19. Genet Med. 2016. PMID: 26583683 Free PMC article.
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants. METHODS: We conducted a systematic literature review of attitudes toward biobanking
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost al …
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