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2015 5
2018 2
2019 2
2020 0
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Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia.
Quon D, Reding M, Guelcher C, Peltier S, Witkop M, Cutter S, Buranahirun C, Molter D, Frey MJ, Forsyth A, Tran DB, Curtis R, Hiura G, Levesque J, de la Riva D, Compton M, Iyer NN, Holot N, Cooper DL. Quon D, et al. Among authors: curtis r. Am J Hematol. 2015 Dec;90 Suppl 2:S17-22. doi: 10.1002/ajh.24219. Am J Hematol. 2015. PMID: 26619193 Free article. Review.
These challenges may be differentiated from those of older adults with hemophilia in large part because of more extensive childhood prophylaxis and safer factor products, resulting in fewer joint problems and lower rates of HIV and HCV infections. ...Challenges identified …
These challenges may be differentiated from those of older adults with hemophilia in large part because of more extensive childhood p …
Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.
Curtis R, Baker J, Riske B, Ullman M, Niu X, Norton K, Lou M, Nichol MB. Curtis R, et al. Am J Hematol. 2015 Dec;90 Suppl 2:S11-6. doi: 10.1002/ajh.24218. Am J Hematol. 2015. PMID: 26619192 Free article. Clinical Trial.
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young adults with hemophilia. ...To remedy this knowledge gap, we examined the impact of hemophilia on physical and social functionin …
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young a …
Burden of illness: direct and indirect costs among persons with hemophilia A in the United States.
Zhou ZY, Koerper MA, Johnson KA, Riske B, Baker JR, Ullman M, Curtis RG, Poon JL, Lou M, Nichol MB. Zhou ZY, et al. Among authors: curtis rg. J Med Econ. 2015 Jun;18(6):457-65. doi: 10.3111/13696998.2015.1016228. Epub 2015 Mar 9. J Med Econ. 2015. PMID: 25660324 Free article.
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Observational data were obtained from HUGS-Va, a multi-center study from six federally supported hemophilia treatment centers (HTCs). .. …
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Obs …
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900. BMJ Open. 2018. PMID: 30093520 Free PMC article.
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. ...CONCLUSIONS: The results of this study suggest that PROBE is a valid questionnaire for evaluating PROs in people with haemophilia
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disord …
Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions.
Witkop M, Guelcher C, Forsyth A, Quon D, Hawk S, Curtis R, Cutter S, Molter D, Cooper DL. Witkop M, et al. Among authors: curtis r. Am J Hematol. 2015 Dec;90 Suppl 2:S1-2. doi: 10.1002/ajh.24217. Am J Hematol. 2015. PMID: 26619191 Free article. No abstract available.
Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.
Witkop M, Guelcher C, Forsyth A, Hawk S, Curtis R, Kelley L, Frick N, Rice M, Rosu G, Cooper DL. Witkop M, et al. Among authors: curtis r. Am J Hematol. 2015 Dec;90 Suppl 2:S3-10. doi: 10.1002/ajh.24220. Am J Hematol. 2015. PMID: 26619194 Free article. Clinical Trial.
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate to severe hemophilia and was led by a multidisciplinary international advisory board. ...A majority of young adults reported that …
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate …
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12. Haemophilia. 2019. PMID: 30861270
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region controlling for haemophilia diagnosis, age group and levels of educations. ...Age and haemophilia diagnosis contributed 3.42% …
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region …
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6. Haemophilia. 2019. PMID: 30520534
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing health status in patients with haemophilia and participants without bleeding disorders. ...For haemophilia-related questions (T1 …
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing he …
Self-reported barriers to hemophilia care in people with factor VIII deficiency.
Zhou ZY, Riske B, Forsberg AD, Ullman M, Baker JR, Koerper MA, Curtis RG, Lou M, Joanne W, Johnson KA. Zhou ZY, et al. Among authors: curtis rg. Am J Prev Med. 2011 Dec;41(6 Suppl 4):S346-53. doi: 10.1016/j.amepre.2011.09.003. Am J Prev Med. 2011. PMID: 22099357
BACKGROUND: In 1975, a national network of hemophilia treatment centers (HTCs) was created to increase access to healthcare services for individuals with hemophilia. ...RESULTS: Data for 327 participants (50% adult, 64% severe hemophilia) were analyzed in 201 …
BACKGROUND: In 1975, a national network of hemophilia treatment centers (HTCs) was created to increase access to healthcare services …
Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors.
Soucie JM, Cianfrini C, Janco RL, Kulkarni R, Hambleton J, Evatt B, Forsyth A, Geraghty S, Hoots K, Abshire T, Curtis R, Forsberg A, Huszti H, Wagner M, White GC 2nd. Soucie JM, et al. Among authors: curtis r. Blood. 2004 Apr 1;103(7):2467-73. doi: 10.1182/blood-2003-05-1457. Epub 2003 Nov 13. Blood. 2004. PMID: 14615381
Chronic joint disease from repeated bleeding into joints is a serious complication of hemophilia. To measure the extent of and to identify risk factors for deviations from normal in joint range of motion (ROM), we used cross-sectional data collected from 4343 males with …
Chronic joint disease from repeated bleeding into joints is a serious complication of hemophilia. To measure the extent of and to ide …
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