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Evaluation of the sexual health in people living with hemophilia.
Germini F, Chai-Adisaksopha C, Pete D, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker JS, Thabane L, Crowther MA, Skinner MW, Iorio A. Germini F, et al. Among authors: curtis r. Haemophilia. 2021 Nov;27(6):993-1001. doi: 10.1111/hae.14410. Epub 2021 Sep 19. Haemophilia. 2021. PMID: 34538001
BACKGROUND: Knowledge about sexual health, difficulty with sexual activity and intimacy (sexual difficulty), in people with hemophilia is little understood. OBJECTIVES: The objectives were to determine the prevalence of sexual difficulty in people living with hemophilia
BACKGROUND: Knowledge about sexual health, difficulty with sexual activity and intimacy (sexual difficulty), in people with hemophilia
Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia.
Quon D, Reding M, Guelcher C, Peltier S, Witkop M, Cutter S, Buranahirun C, Molter D, Frey MJ, Forsyth A, Tran DB, Curtis R, Hiura G, Levesque J, de la Riva D, Compton M, Iyer NN, Holot N, Cooper DL. Quon D, et al. Among authors: curtis r. Am J Hematol. 2015 Dec;90 Suppl 2:S17-22. doi: 10.1002/ajh.24219. Am J Hematol. 2015. PMID: 26619193 Free article. Review.
These challenges may be differentiated from those of older adults with hemophilia in large part because of more extensive childhood prophylaxis and safer factor products, resulting in fewer joint problems and lower rates of HIV and HCV infections. ...Challenges identified …
These challenges may be differentiated from those of older adults with hemophilia in large part because of more extensive childhood p …
Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol MB, Germini F, O'Mahony B, Page D, Stonebraker JS, Skinner MW, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. Haemophilia. 2021 Jan;27 Suppl 1:17-24. doi: 10.1111/hae.14105. Epub 2020 Sep 1. Haemophilia. 2021. PMID: 32870546
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in people with non-severe (mild and moderate) haemophilia. ...CONCLUSION: People affected by mild or moderate haemophilia report a sig …
INTRODUCTION: There are limited data on the impact of haemophilia on health status and health-related quality of life (HRQL) in peopl …
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment.
Witkop M, Morgan G, O'Hara J, Recht M, Buckner TW, Nugent D, Curtis R, O'Mahony B, Skinner MW, Mulhern B, Cawson M, Ali TM, Sawyer EK, Li N. Witkop M, et al. Among authors: curtis r. Haemophilia. 2021 Sep;27(5):769-782. doi: 10.1111/hae.14383. Epub 2021 Jul 26. Haemophilia. 2021. PMID: 34310811
The relative importance of each attribute was analysed overall and for subgroups based on haemophilia type and severity. RESULTS: A total of 183 males with haemophilia A (n = 120) or B (n = 63) were included. ...Dose frequency/durability had the greatest importance …
The relative importance of each attribute was analysed overall and for subgroups based on haemophilia type and severity. RESULTS: A t …
Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.
Curtis R, Baker J, Riske B, Ullman M, Niu X, Norton K, Lou M, Nichol MB. Curtis R, et al. Am J Hematol. 2015 Dec;90 Suppl 2:S11-6. doi: 10.1002/ajh.24218. Am J Hematol. 2015. PMID: 26619192 Free article.
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young adults with hemophilia. However, few published reports specifically examine health status indicators in this population. To remedy thi …
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young a …
Burden of illness: direct and indirect costs among persons with hemophilia A in the United States.
Zhou ZY, Koerper MA, Johnson KA, Riske B, Baker JR, Ullman M, Curtis RG, Poon JL, Lou M, Nichol MB. Zhou ZY, et al. Among authors: curtis rg. J Med Econ. 2015 Jun;18(6):457-65. doi: 10.3111/13696998.2015.1016228. Epub 2015 Mar 9. J Med Econ. 2015. PMID: 25660324 Free article.
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Observational data were obtained from HUGS-Va, a multi-center study from six federally supported hemophilia treatment centers (HTCs). .. …
OBJECTIVE: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. METHODS: Obs …
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900. BMJ Open. 2018. PMID: 30093520 Free PMC article.
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. Participants were invited through non-governmental patient organisations in 21 countries between 01/27/2016 and 02/23/2017. ...CONCLUSIO …
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disord …
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: curtis r. Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6. Haemophilia. 2019. PMID: 30520534
METHODS: The PROBE questionnaire covers four domains and is comprised of 29 questions. People with haemophilia (PWH) and participants without bleeding disorder were invited to participate in this study. ...On the questions common to PWH and participants without bleeding di …
METHODS: The PROBE questionnaire covers four domains and is comprised of 29 questions. People with haemophilia (PWH) and participants …
Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.
Witkop M, Guelcher C, Forsyth A, Hawk S, Curtis R, Kelley L, Frick N, Rice M, Rosu G, Cooper DL. Witkop M, et al. Among authors: curtis r. Am J Hematol. 2015 Dec;90 Suppl 2:S3-10. doi: 10.1002/ajh.24220. Am J Hematol. 2015. PMID: 26619194 Free article.
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate to severe hemophilia and was led by a multidisciplinary international advisory board. ...A majority of young adults reported that …
The Hemophilia Experiences, Results and Opportunities (HERO) initiative assessed psychosocial issues reported by people with moderate …
Self-reported barriers to hemophilia care in people with factor VIII deficiency.
Zhou ZY, Riske B, Forsberg AD, Ullman M, Baker JR, Koerper MA, Curtis RG, Lou M, Joanne W, Johnson KA. Zhou ZY, et al. Among authors: curtis rg. Am J Prev Med. 2011 Dec;41(6 Suppl 4):S346-53. doi: 10.1016/j.amepre.2011.09.003. Am J Prev Med. 2011. PMID: 22099357
BACKGROUND: In 1975, a national network of hemophilia treatment centers (HTCs) was created to increase access to healthcare services for individuals with hemophilia. ...RESULTS: Data for 327 participants (50% adult, 64% severe hemophilia) were analyzed in 201 …
BACKGROUND: In 1975, a national network of hemophilia treatment centers (HTCs) was created to increase access to healthcare services …
16 results