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Return of results: ethical and legal distinctions between research and clinical care.
Burke W, Evans BJ, Jarvik GP. Burke W, et al. Am J Med Genet C Semin Med Genet. 2014 Mar;166C(1):105-11. doi: 10.1002/ajmg.c.31393. Epub 2014 Mar 10. Am J Med Genet C Semin Med Genet. 2014. PMID: 24616381 Free PMC article.
Even when clinical utility is the motivator, however, the return of individual research results is not equivalent to clinical care. ...As a corollary, researchers risk promoting a therapeutic misconception if they create quasi-c
Even when clinical utility is the motivator, however, the return of individual research results is not equivalen …
Research in children.
Burns JP. Burns JP. Crit Care Med. 2003 Mar;31(3 Suppl):S131-6. doi: 10.1097/01.CCM.0000054905.39382.58. Crit Care Med. 2003. PMID: 12626958 Review.
The use of human subjects, however, presents complex legal and ethical challenges for the scientific community and for society. ...The development of guidelines and policies to protect children as research subjects is reviewed. Special focus is given to the p …
The use of human subjects, however, presents complex legal and ethical challenges for the scientific community and for society …