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Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group; Burke W. Jarvik GP, et al. Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8. Am J Hum Genet. 2014. PMID: 24814192 Free PMC article.
Parents' preferences for return of results in pediatric genomic research.
Ziniel SI, Savage SK, Huntington N, Amatruda J, Green RC, Weitzman ER, Taylor P, Holm IA. Ziniel SI, et al. Among authors: savage sk. Public Health Genomics. 2014;17(2):105-14. doi: 10.1159/000358539. Epub 2014 Mar 13. Public Health Genomics. 2014. PMID: 24642506 Free PMC article.
Family health history reporting is sensitive to small changes in wording.
Conway-Pearson LS, Christensen KD, Savage SK, Huntington NL, Weitzman ER, Ziniel SI, Bacon P, Cacioppo CN, Green RC, Holm IA. Conway-Pearson LS, et al. Among authors: savage sk. Genet Med. 2016 Dec;18(12):1308-1311. doi: 10.1038/gim.2016.45. Epub 2016 May 5. Genet Med. 2016. PMID: 27148937 Free PMC article.
Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?
Mitchell PB, Ziniel SI, Savage SK, Christensen KD, Weitzman ER, Green RC, Huntington NL, Mathews DJ, Holm IA. Mitchell PB, et al. Among authors: savage sk. J Empir Res Hum Res Ethics. 2018 Apr;13(2):125-138. doi: 10.1177/1556264617753483. Epub 2018 Feb 23. J Empir Res Hum Res Ethics. 2018. PMID: 29471711 Free PMC article. Clinical Trial.
26 results