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Promoting self-management and adherence during prophylaxis: evidence-based recommendations for haemophilia professionals.
Schrijvers LH, Schuurmans MJ, Fischer K. Schrijvers LH, et al. Haemophilia. 2016 Jul;22(4):499-506. doi: 10.1111/hae.12904. Epub 2016 Apr 14. Haemophilia. 2016. PMID: 27075653 Review.
The aim of this study was to provide an overview of the current evidence on self-management and adherence to prophylaxis in haemophilia. METHOD: Based on series of studies and published literature, aspects of treatment were explored: learning and performing self-infusion, …
The aim of this study was to provide an overview of the current evidence on self-management and adherence to prophylaxis in haemophilia
Barriers and motivators of adherence to prophylactic treatment in haemophilia: a systematic review.
Schrijvers LH, Uitslager N, Schuurmans MJ, Fischer K. Schrijvers LH, et al. Haemophilia. 2013 May;19(3):355-61. doi: 10.1111/hae.12079. Epub 2013 Jan 2. Haemophilia. 2013. PMID: 23279084 Review.
Long-term adherence to prophylactic therapy is the key to successful prevention of bleeds in severe haemophilia. The present study aims to provide a systematic review of the literature on the determinants of adherence to prophylaxis in haemophilia. ...This informati …
Long-term adherence to prophylactic therapy is the key to successful prevention of bleeds in severe haemophilia. The present study ai …
Adherence to prophylaxis and bleeding outcome in haemophilia: a multicentre study.
Schrijvers LH, Beijlevelt-van der Zande M, Peters M, Lock J, Cnossen MH, Schuurmans MJ, Fischer K. Schrijvers LH, et al. Br J Haematol. 2016 Aug;174(3):454-60. doi: 10.1111/bjh.14072. Epub 2016 Apr 21. Br J Haematol. 2016. PMID: 27098446
Prevention of bleeding and joint damage in severe haemophilia is dependent on adherence to prophylactic replacement therapy. The aim of this study was to assess adherence to prophylaxis, including associations with age, bleeding and clotting factor consumption (CFC). In th …
Prevention of bleeding and joint damage in severe haemophilia is dependent on adherence to prophylactic replacement therapy. The aim …
The experiences and attitudes of hemophilia carriers around pregnancy: A qualitative systematic review.
Punt MC, Aalders TH, Bloemenkamp KWM, Driessens MHE, Fischer K, Schrijvers MH, van Galen KPM. Punt MC, et al. J Thromb Haemost. 2020 Jul;18(7):1626-1636. doi: 10.1111/jth.14825. Epub 2020 May 12. J Thromb Haemost. 2020. PMID: 32271985 Free PMC article. Review.
BACKGROUND: Hemophilia carriers (HCs) face specific psychosocial challenges related to pregnancy, caused by their inherited bleeding disorder. ...Future studies are needed on the experiences and needs of HCs through pregnancy and puerperium as well as in light of emerging …
BACKGROUND: Hemophilia carriers (HCs) face specific psychosocial challenges related to pregnancy, caused by their inherited bleeding …
Coping in adult patients with severe haemophilia.
Binnema M, Schrijvers LH, Bos R, Schuurmans MJ, Fischer K. Binnema M, et al. Haemophilia. 2014 Jul;20(4):513-8. doi: 10.1111/hae.12366. Epub 2014 Jan 24. Haemophilia. 2014. PMID: 24456085
In total, 86 adults with severe haemophilia (FVIII/IX<1%) were included. The median age was 38 years (range: 18-68) with 85% affected with haemophilia A and 75% using prophylaxis. Patients with haemophilia used task-oriented coping as frequently as the con …
In total, 86 adults with severe haemophilia (FVIII/IX<1%) were included. The median age was 38 years (range: 18-68) with 85% affec …
A European curriculum for nurses working in haemophilia.
EAHAD Nurses Committee, Harrington C, Bedford M, Andritschke K, Barrie A, Elfvinge P, Grønhaug S, Mueller-Kagi E, Leenders B, Schrijvers LH. EAHAD Nurses Committee, et al. Haemophilia. 2016 Jan;22(1):103-9. doi: 10.1111/hae.12785. Epub 2015 Aug 17. Haemophilia. 2016. PMID: 26278710
INTRODUCTION: Currently, there is no consensus on education required to develop haemophilia nursing. The aim was to develop a curriculum for haemophilia nurses that could be used as a resource in Europe. ...For curriculum content the following domains were identifie …
INTRODUCTION: Currently, there is no consensus on education required to develop haemophilia nursing. The aim was to develop a curricu …
A feasibility study on two tailored interventions to improve adherence in adults with haemophilia.
Hoefnagels JW, Fischer K, Bos RAT, Driessens MHE, Meijer SLA, Schutgens REG, Schrijvers LH. Hoefnagels JW, et al. Pilot Feasibility Stud. 2020 Dec 1;6(1):189. doi: 10.1186/s40814-020-00723-w. Pilot Feasibility Stud. 2020. PMID: 33292771 Free PMC article.
INTRODUCTION: Haemophilia is a congenital bleeding disorder mainly affecting males. ...METHODS: Patients with severe haemophilia and acceptance or self-management problems were eligible. ...
INTRODUCTION: Haemophilia is a congenital bleeding disorder mainly affecting males. ...METHODS: Patients with severe haemophilia
The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study.
Hoefnagels JW, Kars MC, Fischer K, Schutgens R, Schrijvers LH. Hoefnagels JW, et al. Patient Prefer Adherence. 2020 Jan 23;14:163-171. doi: 10.2147/PPA.S232393. eCollection 2020. Patient Prefer Adherence. 2020. PMID: 32158199 Free PMC article.
PURPOSE: Adolescents and young adults (AYAs) with severe hemophilia use prophylaxis that requires a high level of adherence. The present study aimed to explore the underlying reason for adherence and non-adherence to prophylaxis in hemophilia from the perspective of …
PURPOSE: Adolescents and young adults (AYAs) with severe hemophilia use prophylaxis that requires a high level of adherence. The pres …
Unravelling adherence to prophylaxis in haemophilia: a patients' perspective.
Schrijvers LH, Kars MC, Beijlevelt-van der Zande M, Peters M, Schuurmans MJ, Fischer K. Schrijvers LH, et al. Haemophilia. 2015 Sep;21(5):612-21. doi: 10.1111/hae.12660. Epub 2015 Apr 9. Haemophilia. 2015. PMID: 25858411
Given the lifelong therapy in haemophilia patients, insight in non-adherence behaviour from a patient perspective is important to understand patients' difficulties with the following treatment recommendations. ...Patients' perception was influenced by two main factors: acc …
Given the lifelong therapy in haemophilia patients, insight in non-adherence behaviour from a patient perspective is important to und …
Learning intravenous infusion in haemophilia: experience from the Netherlands.
Schrijvers LH, Beijlevelt-van der Zande M, Peters M, Schuurmans MJ, Fischer K. Schrijvers LH, et al. Haemophilia. 2012 Jul;18(4):516-20. doi: 10.1111/j.1365-2516.2012.02752.x. Epub 2012 Feb 1. Haemophilia. 2012. PMID: 22292416
Nowadays, nearly all severe haemophilia patients in the Netherlands practice self infusion at home. ...In order to inform patients about the burden and time-investment needed to learn intravenous infusion, we performed a two-centre retrospective study. All data on the lear …
Nowadays, nearly all severe haemophilia patients in the Netherlands practice self infusion at home. ...In order to inform patients ab …
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