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Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
Van Bulck L, Goossens E, Luyckx K, Apers S, Oechslin E, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Van Bulck L, et al. Among authors: soufi a. BMC Health Serv Res. 2020 Jun 3;20(1):496. doi: 10.1186/s12913-020-05361-9. BMC Health Serv Res. 2020. PMID: 32493367 Free PMC article.
Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods.
Apers S, Kovacs AH, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P; APPROACH-IS consortium; International Society for Adult Congenital Heart Disease (ISACHD). Apers S, et al. Among authors: soufi a. Int J Cardiol. 2015 Jan 20;179:334-42. doi: 10.1016/j.ijcard.2014.11.084. Epub 2014 Nov 8. Int J Cardiol. 2015. PMID: 25464481 Free article. Clinical Trial.
Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics.
Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Romfh AW, White K, Callus E, Kutty S, Fieuws S, Moons P; APPROACH-IS consortium and ISACHD. Apers S, et al. Among authors: soufi a. J Am Coll Cardiol. 2016 May 17;67(19):2237-2245. doi: 10.1016/j.jacc.2016.03.477. J Am Coll Cardiol. 2016. PMID: 27173035 Free article.
Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.
Caruana M, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Sluman M, Eriksen K, Dellborg M, Berghammer M, Johansson B, Soufi A, Callus E, Moons P, Grech V; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Caruana M, et al. Among authors: soufi a. Pediatr Cardiol. 2017 Jun;38(5):965-973. doi: 10.1007/s00246-017-1604-y. Epub 2017 Mar 24. Pediatr Cardiol. 2017. PMID: 28341902 Free article.
Illness perceptions in adult congenital heart disease: A multi-center international study.
Rassart J, Apers S, Kovacs AH, Moons P, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Rempel GR, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Luyckx K; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Rassart J, et al. Among authors: soufi a. Int J Cardiol. 2017 Oct 1;244:130-138. doi: 10.1016/j.ijcard.2017.06.072. Epub 2017 Jun 26. Int J Cardiol. 2017. PMID: 28669511
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.
Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: soufi a. Int J Cardiol. 2018 Jan 15;251:34-41. doi: 10.1016/j.ijcard.2017.10.064. Epub 2017 Oct 21. Int J Cardiol. 2018. PMID: 29107358 Clinical Trial.
Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.
Fogleman ND, Apers S, Moons P, Morrison S, Wittekind SG, Tomlin M, Gosney K, Sluman MA, Johansson B, Enomoto J, Dellborg M, Lu CW, Subramanyan R, Luyckx K, Budts W, Jackson J, Kovacs A, Soufi A, Eriksen K, Thomet C, Berghammer M, Callus E, Fernandes SM, Caruana M, Cook SC, Mackie AS, White KS, Khairy P, Kutty S, Veldtman G; APPROACH-IS consortium. Fogleman ND, et al. Among authors: soufi a. Am Heart J. 2017 Nov;193:55-62. doi: 10.1016/j.ahj.2017.07.019. Epub 2017 Aug 2. Am Heart J. 2017. PMID: 29129255 Clinical Trial.
A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.
Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Holbein CE, et al. Among authors: soufi a. Congenit Heart Dis. 2018 May;13(3):392-400. doi: 10.1111/chd.12583. Epub 2018 Jan 3. Congenit Heart Dis. 2018. PMID: 29457362 Free PMC article.
Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe.
Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S; APPROACH-IS Consortium; International Society for Adult Congenital Heart Disease (ISACHD). Moons P, et al. Among authors: soufi a. Int J Cardiol. 2019 Jan 1;274:93-99. doi: 10.1016/j.ijcard.2018.07.103. Epub 2018 Jul 23. Int J Cardiol. 2019. PMID: 30077534
63 results