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The disclosure of diagnosis codes can breach research participants' privacy.
Loukides G, Denny JC, Malin B. Loukides G, et al. J Am Med Inform Assoc. 2010 May-Jun;17(3):322-7. doi: 10.1136/jamia.2009.002725. J Am Med Inform Assoc. 2010. PMID: 20442151 Free PMC article.
OBJECTIVE: De-identified clinical data in standardized form (eg, diagnosis codes), derived from electronic medical records, are increasingly combined with research data (eg, DNA sequences) and disseminated to enable scientific investigations. ...RESULT …
OBJECTIVE: De-identified clinical data in standardized form (eg, diagnosis codes), derived from electronic medical reco …
Exploring the Experiences of Women and Health Care Workers in the Context of PMTCT Option B Plus in Malawi.
Cataldo F, Chiwaula L, Nkhata M, van Lettow M, Kasende F, Rosenberg NE, Tweya H, Sampathkumar V, Hosseinipour M, Schouten E, Kapito-Tembo A, Eliya M, Chimbwandira F, Phiri S; PURE Malawi Consortium. Cataldo F, et al. J Acquir Immune Defic Syndr. 2017 Apr 15;74(5):517-522. doi: 10.1097/QAI.0000000000001273. J Acquir Immune Defic Syndr. 2017. PMID: 28045712 Free PMC article.
METHODS: Study participants were purposively selected across 6 health facilities in 3 regional health zones in Malawi. ...Disclosure remains a difficult process within families and couples. ...
METHODS: Study participants were purposively selected across 6 health facilities in 3 regional health zones in Malawi. ...Disclosu
Prevalence of Mental Illness and Mental Health Care Use Among Police Officers.
Jetelina KK, Molsberry RJ, Gonzalez JR, Beauchamp AM, Hall T. Jetelina KK, et al. JAMA Netw Open. 2020 Oct 1;3(10):e2019658. doi: 10.1001/jamanetworkopen.2020.19658. JAMA Netw Open. 2020. PMID: 33026452 Free PMC article.
DESIGN, SETTING, AND PARTICIPANTS: This survey study was conducted among officers at a large police department in Dallas-Fort Worth, Texas. ...RESULTS: Of the 446 officers invited to participate, 434 (97%) completed the survey (mean [SD] age, 37 [10] years; 354 [82% …
DESIGN, SETTING, AND PARTICIPANTS: This survey study was conducted among officers at a large police department in Dallas-Fort Worth, …
Understanding Barriers to Scaling Up HIV-Assisted Partner Services in Kenya.
Goyette M, Wamuti BM, Owuor M, Bukusi D, Maingi PM, Otieno FA, Cherutich P, Ng'ang'a A, Farquhar C. Goyette M, et al. AIDS Patient Care STDS. 2016 Nov;30(11):506-511. doi: 10.1089/apc.2016.0151. AIDS Patient Care STDS. 2016. PMID: 27849369 Free PMC article. Clinical Trial.
We conducted 20 in-depth interviews with clients who declined enrollment in the APS study and 9 focus group discussions with health advisors, HIV testing and counseling (HTC) counselors, and the general HTC client population. Two analysts coded the data using an open co
We conducted 20 in-depth interviews with clients who declined enrollment in the APS study and 9 focus group discussions with health advisors …
Ethical considerations about observational research in children.
Wilfond B. Wilfond B. J Trauma. 2007 Dec;63(6 Suppl):S146-51; discussion S152-4. doi: 10.1097/TA.0b013e31815acd60. J Trauma. 2007. PMID: 18091208
Efforts like database encryption and linked codes can minimize these risks. These issues become more complicated when information has sufficient clinical value to warrant direct disclosure to the family. It is important to communicate basic information to par …
Efforts like database encryption and linked codes can minimize these risks. These issues become more complicated when information has …