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The disclosure of diagnosis codes can breach research participants' privacy.
Loukides G, Denny JC, Malin B. Loukides G, et al. J Am Med Inform Assoc. 2010 May-Jun;17(3):322-7. doi: 10.1136/jamia.2009.002725. J Am Med Inform Assoc. 2010. PMID: 20442151 Free PMC article.
OBJECTIVE: De-identified clinical data in standardized form (eg, diagnosis codes), derived from electronic medical records, are increasingly combined with research data (eg, DNA sequences) and disseminated to enable scientific investigations. ...MEASUR …
OBJECTIVE: De-identified clinical data in standardized form (eg, diagnosis codes), derived from electronic medical reco …
Exploring the Experiences of Women and Health Care Workers in the Context of PMTCT Option B Plus in Malawi.
Cataldo F, Chiwaula L, Nkhata M, van Lettow M, Kasende F, Rosenberg NE, Tweya H, Sampathkumar V, Hosseinipour M, Schouten E, Kapito-Tembo A, Eliya M, Chimbwandira F, Phiri S; PURE Malawi Consortium. Cataldo F, et al. J Acquir Immune Defic Syndr. 2017 Apr 15;74(5):517-522. doi: 10.1097/QAI.0000000000001273. J Acquir Immune Defic Syndr. 2017. PMID: 28045712 Free PMC article.
Data were analyzed using a qualitative thematic coding framework. RESULTS: Patients and HCWs identified the lack of male involvement as a barrier to retention in care and expressed concerns at the rapidity of the test-and-treat process, which makes it difficult for patient …
Data were analyzed using a qualitative thematic coding framework. RESULTS: Patients and HCWs identified the lack of male involvement …
Understanding Barriers to Scaling Up HIV-Assisted Partner Services in Kenya.
Goyette M, Wamuti BM, Owuor M, Bukusi D, Maingi PM, Otieno FA, Cherutich P, Ng'ang'a A, Farquhar C. Goyette M, et al. AIDS Patient Care STDS. 2016 Nov;30(11):506-511. doi: 10.1089/apc.2016.0151. AIDS Patient Care STDS. 2016. PMID: 27849369 Free PMC article. Clinical Trial.
Two analysts coded the data using an open coding approach and identified major themes and subthemes. Many participants reported needing more time to process an HIV-positive result before providing partner information. ...A client's decision to provide …
Two analysts coded the data using an open coding approach and identified major themes and subthemes. Many participants
Ethical considerations about observational research in children.
Wilfond B. Wilfond B. J Trauma. 2007 Dec;63(6 Suppl):S146-51; discussion S152-4. doi: 10.1097/TA.0b013e31815acd60. J Trauma. 2007. PMID: 18091208
Efforts like database encryption and linked codes can minimize these risks. These issues become more complicated when information has sufficient clinical value to warrant direct disclosure to the family. ...Further, obtaining consent from adults who have p
Efforts like database encryption and linked codes can minimize these risks. These issues become more complicated when information has …
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