Skip to main page content
Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

My NCBI Filters
Results by year

Table representation of search results timeline featuring number of search results per year.

Year Number of Results
2012 1
2013 1
2014 1
2015 1
2018 5
2019 2
2020 1
Text availability
Article attribute
Article type
Publication date

Search Results

11 results
Results by year

Citations

1 article found by citation matching

Search results

Filters applied: . Clear all
Page 1
Points-to-consider on the return of results in epigenetic research.
Dyke SOM, Saulnier KM, Dupras C, Webster AP, Maschke K, Rothstein M, Siebert R, Walter J, Beck S, Pastinen T, Joly Y. Dyke SOM, et al. Genome Med. 2019 May 23;11(1):31. doi: 10.1186/s13073-019-0646-6. Genome Med. 2019. PMID: 31122281 Free PMC article. Review.
Members of the International Human Epigenome Consortium (IHEC) Bioethics Workgroup considered the potential ethical, legal, and social issues (ELSI) involved in returning epigenetic research results and incidental findings in order to produce a set of …
Members of the International Human Epigenome Consortium (IHEC) Bioethics Workgroup considered the potential ethical, legal, and socia …
Returning Results to Family Members: Professional Duties in Genomics Research in the United States.
Fox D, Spencer E, Torkamani A. Fox D, et al. J Leg Med. 2018 Apr-Jun;38(2):201-219. doi: 10.1080/01947648.2017.1417934. J Leg Med. 2018. PMID: 30289737
This article critically appraises the ethical and legal duties to disclose findings to the family members of research participants. ...Research laboratories should generally be immune from liability for failing to diagnose or disclose a genetic disorder in ti …
This article critically appraises the ethical and legal duties to disclose findings to the family members of research particip …
The legal risks of returning results of genomics research.
Clayton EW, McGuire AL. Clayton EW, et al. Genet Med. 2012 Apr;14(4):473-7. doi: 10.1038/gim.2012.10. Epub 2012 Feb 9. Genet Med. 2012. PMID: 22323070 Free PMC article.
Although some have argued against the return of results in research, many cite an emerging consensus that there is an ethical obligation to return at least some results; the debate quickly turns to issues of mechanics (e.g., which results
Although some have argued against the return of results in research, many cite an emerging consensus that there is an e …
Toward the implementation of genomic applications for smoking cessation and smoking-related diseases.
Ramsey AT, Chen LS, Hartz SM, Saccone NL, Fisher SL, Proctor EK, Bierut LJ. Ramsey AT, et al. Transl Behav Med. 2018 Jan 29;8(1):7-17. doi: 10.1093/tbm/ibx060. Transl Behav Med. 2018. PMID: 29385591 Free PMC article. Review.
Our review identified at least three specific genomic applications for which implementation may be considered, including the use of CHRNA5 genetic test results for informing disease risk, optimizing smoking cessation treatment, and motivating smoking behavior change …
Our review identified at least three specific genomic applications for which implementation may be considered, including the use of CHRNA5 g …
Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Wolf SM, et al. J Law Med Ethics. 2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27. J Law Med Ethics. 2018. PMID: 30008546 Free PMC article. No abstract available.
The BabySeq project: implementing genomic sequencing in newborns.
Holm IA, Agrawal PB, Ceyhan-Birsoy O, Christensen KD, Fayer S, Frankel LA, Genetti CA, Krier JB, LaMay RC, Levy HL, McGuire AL, Parad RB, Park PJ, Pereira S, Rehm HL, Schwartz TS, Waisbren SE, Yu TW; BabySeq Project Team, Green RC, Beggs AH. Holm IA, et al. BMC Pediatr. 2018 Jul 9;18(1):225. doi: 10.1186/s12887-018-1200-1. BMC Pediatr. 2018. PMID: 29986673 Free PMC article. Clinical Trial.
All families participate in a disclosure session, which includes the return of results for those in the sequencing arm. Outcomes are collected through review of medical records and surveys of parents and health care providers and include the rationale for choice of …
All families participate in a disclosure session, which includes the return of results for those in the sequencing arm. Outcom …
Returning negative results to individuals in a genomic screening program: lessons learned.
Butterfield RM, Evans JP, Rini C, Kuczynski KJ, Waltz M, Cadigan RJ, Goddard KAB, Muessig KR, Henderson GE. Butterfield RM, et al. Genet Med. 2019 Feb;21(2):409-416. doi: 10.1038/s41436-018-0061-1. Epub 2018 Jun 6. Genet Med. 2019. PMID: 29875426 Free PMC article.
PURPOSE: In genomics, the return of negative screening results for rare, medically actionable conditions in large unselected populations with low prior risk of disease is novel and may involve important and nuanced concerns for communicating their mean …
PURPOSE: In genomics, the return of negative screening results for rare, medically actionable conditions in large unsel …
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Wolf SM, et al. J Law Med Ethics. 2015 Fall;43(3):440-63. doi: 10.1111/jlme.12288. J Law Med Ethics. 2015. PMID: 26479555 Free PMC article.
Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results
Genomic research results and incidental findings with health implications for a research participant are of potential i …
Ethical challenges of precision cancer medicine.
Winkler EC, Knoppers BM. Winkler EC, et al. Semin Cancer Biol. 2020 Oct 9:S1044-579X(20)30201-7. doi: 10.1016/j.semcancer.2020.09.009. Online ahead of print. Semin Cancer Biol. 2020. PMID: 33045356 Review.
With the advent of genomic sequencing technologies, achieving precision cancer medicine requires prospective norms due to the large and varied sources of data involved. Here, we discuss the ethical and legal aspects of the policy debate around the relevant topics in precis …
With the advent of genomic sequencing technologies, achieving precision cancer medicine requires prospective norms due to the large and vari …
Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.
McGuire AL, Knoppers BM, Zawati MH, Clayton EW. McGuire AL, et al. Genome Res. 2014 May;24(5):719-23. doi: 10.1101/gr.170514.113. Epub 2014 Mar 27. Genome Res. 2014. PMID: 24676095 Free PMC article.
Genomic researchers increasingly are faced with difficult decisions about whether, under what circumstances, and how to return research results and significant incidental findings to study participants. ...At the international level, over the last decade ther …
Genomic researchers increasingly are faced with difficult decisions about whether, under what circumstances, and how to return res
11 results
You have reached the last page of results. A maximum of 10,000 results are available.
Jump to page
Feedback