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2018 5
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2021 4
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Points-to-consider on the return of results in epigenetic research.
Dyke SOM, Saulnier KM, Dupras C, Webster AP, Maschke K, Rothstein M, Siebert R, Walter J, Beck S, Pastinen T, Joly Y. Dyke SOM, et al. Genome Med. 2019 May 23;11(1):31. doi: 10.1186/s13073-019-0646-6. Genome Med. 2019. PMID: 31122281 Free PMC article. Review.
Members of the International Human Epigenome Consortium (IHEC) Bioethics Workgroup considered the potential ethical, legal, and social issues (ELSI) involved in returning epigenetic research results and incidental findings in order to produce a set of …
Members of the International Human Epigenome Consortium (IHEC) Bioethics Workgroup considered the potential ethical, legal, and socia …
The legal risks of returning results of genomics research.
Clayton EW, McGuire AL. Clayton EW, et al. Genet Med. 2012 Apr;14(4):473-7. doi: 10.1038/gim.2012.10. Epub 2012 Feb 9. Genet Med. 2012. PMID: 22323070 Free PMC article.
Although some have argued against the return of results in research, many cite an emerging consensus that there is an ethical obligation to return at least some results; the debate quickly turns to issues of mechanics (e.g., which results …
Although some have argued against the return of results in research, many cite an emerging consensus that there is an e …
Returning Results to Family Members: Professional Duties in Genomics Research in the United States.
Fox D, Spencer E, Torkamani A. Fox D, et al. J Leg Med. 2018 Apr-Jun;38(2):201-219. doi: 10.1080/01947648.2017.1417934. J Leg Med. 2018. PMID: 30289737
This article critically appraises the ethical and legal duties to disclose findings to the family members of research participants. ...Research laboratories should generally be immune from liability for failing to diagnose or disclose a genetic disorder in ti …
This article critically appraises the ethical and legal duties to disclose findings to the family members of research particip …
Ethical, legal and social implications of human genome studies in radiation research: a workshop report for studies on atomic bomb survivors at the Radiation Effects Research Foundation.
Noda A, Kato K, Tamura C, Biesecker LG, Imaizumi M, Inoue Y, Henderson GE, Wilfond B, Muto K, Naito M, Kayukawa J. Noda A, et al. J Radiat Res. 2021 Jul 10;62(4):656-661. doi: 10.1093/jrr/rrab043. J Radiat Res. 2021. PMID: 34059901 Free PMC article.
In December 2020, RERF held a virtual international workshop on the ethical, legal and social implications (ELSI) of genome studies. In this workshop, the ELSI considerations of future human genome studies on radiation research including atomic bomb survivors and th …
In December 2020, RERF held a virtual international workshop on the ethical, legal and social implications (ELSI) of genome studies. …
Genomic medicine and the "loss of chance" medical malpractice doctrine.
Wagner JK, Meyer MN. Wagner JK, et al. HGG Adv. 2021 Jul 8;2(3):100032. doi: 10.1016/j.xhgg.2021.100032. Epub 2021 Apr 5. HGG Adv. 2021. PMID: 34250511 Free PMC article.
As genomic medicine expands, interest in how medical malpractice law will apply to such questions as whether and when to return new or updated genomic results has grown. Given that access to some genomic results (such as those pertaining to minors or those fo …
As genomic medicine expands, interest in how medical malpractice law will apply to such questions as whether and when to return new o …
Ethical challenges of precision cancer medicine.
Winkler EC, Knoppers BM. Winkler EC, et al. Semin Cancer Biol. 2020 Oct 9:S1044-579X(20)30201-7. doi: 10.1016/j.semcancer.2020.09.009. Online ahead of print. Semin Cancer Biol. 2020. PMID: 33045356 Review.
With the advent of genomic sequencing technologies, achieving precision cancer medicine requires prospective norms due to the large and varied sources of data involved. Here, we discuss the ethical and legal aspects of the policy debate around the relevant topics in precis …
With the advent of genomic sequencing technologies, achieving precision cancer medicine requires prospective norms due to the large and vari …
Toward the implementation of genomic applications for smoking cessation and smoking-related diseases.
Ramsey AT, Chen LS, Hartz SM, Saccone NL, Fisher SL, Proctor EK, Bierut LJ. Ramsey AT, et al. Transl Behav Med. 2018 Jan 29;8(1):7-17. doi: 10.1093/tbm/ibx060. Transl Behav Med. 2018. PMID: 29385591 Free PMC article. Review.
Our review identified at least three specific genomic applications for which implementation may be considered, including the use of CHRNA5 genetic test results for informing disease risk, optimizing smoking cessation treatment, and motivating smoking behavior change …
Our review identified at least three specific genomic applications for which implementation may be considered, including the use of CHRNA5 g …
Defining the Critical Components of Informed Consent for Genetic Testing.
Ormond KE, Borensztein MJ, Hallquist MLG, Buchanan AH, Faucett WA, Peay HL, Smith ME, Tricou EP, Uhlmann WR, Wain KE, Coughlin CR 2nd, On Behalf Of The Clinical Genome CADRe Workgroup. Ormond KE, et al. J Pers Med. 2021 Dec 5;11(12):1304. doi: 10.3390/jpm11121304. J Pers Med. 2021. PMID: 34945775 Free PMC article.
; (3) what results will be returned and to whom?; (4) are there other types of potential results, and what choices exist?...; and (8) potential risk of genetic discrimination and legal protections. CONCLUSION: Defining the core concepts necessar …
; (3) what results will be returned and to whom?; (4) are there other types of potential results, and what choices exis …
The ethics of genetic testing for kidney diseases.
Sabatello M, Milo Rasouly H. Sabatello M, et al. Nat Rev Nephrol. 2020 Nov;16(11):619-620. doi: 10.1038/s41581-020-0294-5. Epub 2020 May 1. Nat Rev Nephrol. 2020. PMID: 32358593 Free PMC article.
Growing genomic knowledge has provided immense insight into the aetiology and mechanisms of kidney diseases but raises ethical issues that risk the successful implementation of genomic medicine. We highlight such issues in two contexts: the return of individual gene …
Growing genomic knowledge has provided immense insight into the aetiology and mechanisms of kidney diseases but raises ethical issues that …
Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review.
Walker A, Bonham VL, Boyce A, Clayton EW, Garcia D, Johnson S, Laeyendecker O, Lewis M, Margolick JB, Mathews D, Parker MJ, Spicer P, Thio CL, Geller G, Kahn J. Walker A, et al. Ethics Med Public Health. 2021 Sep;18:100684. doi: 10.1016/j.jemep.2021.100684. Epub 2021 Jun 7. Ethics Med Public Health. 2021. PMID: 34263019
PURPOSE: Research in genetics and infectious diseases (ID) presents novel configurations of ethical, legal, and social issues (ELSIs) related to the intersection of genetics with public health regulations and the control of transmissible diseases. ...MAIN FINDINGS: …
PURPOSE: Research in genetics and infectious diseases (ID) presents novel configurations of ethical, legal, and social issues …
18 results