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End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain.
Farrell AT, Panepinto J, Carroll CP, Darbari DS, Desai AA, King AA, Adams RJ, Barber TD, Brandow AM, DeBaun MR, Donahue MJ, Gupta K, Hankins JS, Kameka M, Kirkham FJ, Luksenburg H, Miller S, Oneal PA, Rees DC, Setse R, Sheehan VA, Strouse J, Stucky CL, Werner EM, Wood JC, Zempsky WT. Farrell AT, et al. Among authors: werner em. Blood Adv. 2019 Dec 10;3(23):3982-4001. doi: 10.1182/bloodadvances.2019000882. Blood Adv. 2019. PMID: 31809538 Free PMC article.
Clinical trial implementation and recruitment: lessons learned from the early closure of a randomized clinical trial.
Peters-Lawrence MH, Bell MC, Hsu LL, Osunkwo I, Seaman P, Blackwood M, Guillaume E, Bellevue R, Krishnamurti L, Smith WR, Dampier CD, Minniti CP; Sickle Cell Disease Clinical Research Network (SCDCRN). Peters-Lawrence MH, et al. Contemp Clin Trials. 2012 Mar;33(2):291-7. doi: 10.1016/j.cct.2011.11.018. Epub 2011 Dec 2. Contemp Clin Trials. 2012. PMID: 22155024 Free PMC article. Clinical Trial.
Inpatient management of sickle cell pain: a 'snapshot' of current practice.
Miller ST, Kim HY, Weiner D, Wager CG, Gallagher D, Styles L, Dampier CD; Investigators of the Sickle Cell Disease Clinical Research Network (SCDCRN). Miller ST, et al. Am J Hematol. 2012 Mar;87(3):333-6. doi: 10.1002/ajh.22265. Epub 2012 Jan 9. Am J Hematol. 2012. PMID: 22231150 Free PMC article.
Improving the value of clinical research through the use of Common Data Elements.
Sheehan J, Hirschfeld S, Foster E, Ghitza U, Goetz K, Karpinski J, Lang L, Moser RP, Odenkirchen J, Reeves D, Rubinstein Y, Werner E, Huerta M. Sheehan J, et al. Clin Trials. 2016 Dec;13(6):671-676. doi: 10.1177/1740774516653238. Epub 2016 Jun 15. Clin Trials. 2016. PMID: 27311638 Free PMC article.
State-based surveillance for selected hemoglobinopathies.
Hulihan MM, Feuchtbaum L, Jordan L, Kirby RS, Snyder A, Young W, Greene Y, Telfair J, Wang Y, Cramer W, Werner EM, Kenney K, Creary M, Grant AM. Hulihan MM, et al. Among authors: werner em. Genet Med. 2015 Feb;17(2):125-30. doi: 10.1038/gim.2014.81. Epub 2014 Jul 3. Genet Med. 2015. PMID: 24991875 Free PMC article.
Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services.
Reeve BB, Burke LB, Chiang YP, Clauser SB, Colpe LJ, Elias JW, Fleishman J, Hohmann AA, Johnson-Taylor WL, Lawrence W, Moy CS, Quatrano LA, Riley WT, Smothers BA, Werner EM. Reeve BB, et al. Among authors: werner em. Qual Life Res. 2007;16 Suppl 1:175-86. doi: 10.1007/s11136-007-9190-8. Epub 2007 May 26. Qual Life Res. 2007. PMID: 17530449
34 results