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"Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease.
Orphanet J Rare Dis. 2019 Jun 7;14(1):126. doi: 10.1186/s13023-019-1103-8.
Orphanet J Rare Dis. 2019.
PMID: 31174585
Free PMC article.
209th ENMC International Workshop: Outcome Measures and Clinical Trial Readiness in Spinal Muscular Atrophy 7-9 November 2014, Heemskerk, The Netherlands.
Finkel R, Bertini E, Muntoni F, Mercuri E; ENMC SMA Workshop Study Group.
Finkel R, et al.
Neuromuscul Disord. 2015 Jul;25(7):593-602. doi: 10.1016/j.nmd.2015.04.009. Epub 2015 Apr 28.
Neuromuscul Disord. 2015.
PMID: 26045156
No abstract available.
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