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Closing the Gap to Interventions for Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2).
de Vries PJ, Chambers N, Campbell E, Gutierrez-Lafrentz L, Heunis TM, Schlebusch L, Beaure d'Augères G, Bissell S, Byars A, Capal J, Cardozo L, Cukier S, Davis P, Epstein NB, Fladrowski C, Flinn J, Gipson T, Goy SL, Kingswood JC, Krueger D, Little F, Lubbe S, Mitchell R, Rozenberg M, Sahin M, Silva M, Smith C, Srivastava S, Takei M, van Eeghen A, Vasseghi M, Wagenaar JP, Waltereit R, De Waele L, Jansen AC. de Vries PJ, et al. JMIR Res Protoc. 2026 May 5;15:e91726. doi: 10.2196/91726. JMIR Res Protoc. 2026. PMID: 42085697 Free PMC article.
Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsyciatric Disorders Checklist (TAND-SQ).
Chambers N, Heunis TM, Gardner-Lubbe S, Capal JK, Bissell S, Byars AW, Cukier S, Davis PE, Flinn J, Gipson TT, Kingswood JC, Kumm AJ, Schoeters E, Smith C, Srivastava S, Takei M, Vanclooster S, van Eeghen AM, Waltereit R, Krueger DA, Sahin M, De Waele L, Jansen AC, de Vries PJ. Chambers N, et al. Among authors: de vries pj. Orphanet J Rare Dis. 2025 Jun 13;20(1):304. doi: 10.1186/s13023-025-03642-2. Orphanet J Rare Dis. 2025. PMID: 40514711 Free PMC article.
Protocol for EpiCom: A phase 3b/4 study of behavioral outcomes following adjunctive cannabidiol for the management of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND).
van Eeghen AM, Thiele EA, Amin S, Samanta D, Jansen AC, Stevens J, Moore-Ramdin L, de Vries PJ. van Eeghen AM, et al. Among authors: de vries pj. PLoS One. 2025 Jun 12;20(6):e0324648. doi: 10.1371/journal.pone.0324648. eCollection 2025. PLoS One. 2025. PMID: 40504787 Free PMC article.
Attenborough's echidna rediscovered by combining Indigenous knowledge with camera-trapping.
Morib G, Tilker A, Davranoglou LR, Anasari SD, Balázs A, Barnes PA, Foote MJ, Hamidy A, Heatubun CD, Helgen KM, Inayah N, Ikhwan MK, Jayanto H, Keiluhu HJ, Kobak I, Kobak M, Koungoulos L, Norotouw P, O'Connor S, Subakti SB, Taufiq, de Vries PJ, Webb M, Wiantoro S, Yando H, Yohanita AM, Kempton JA. Morib G, et al. Among authors: de vries pj. NPJ Biodivers. 2025 May 12;4(1):19. doi: 10.1038/s44185-025-00086-6. NPJ Biodivers. 2025. PMID: 40355643 Free PMC article.
317 results