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Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study.
Li SC, Fuhlbrigge RC, Laxer RM, Pope E, Ibarra MF, Stewart K, Mason T 2nd, Becker ML, Hong S, Dedeoglu F, Torok KS, Rabinovich CE, Ferguson PJ, Punaro M, Feldman BM, Andrews T, Higgins GC; CARRA Registry Investigators. Li SC, et al. Pediatr Rheumatol Online J. 2019 Jul 15;17(1):43. doi: 10.1186/s12969-019-0350-5. Pediatr Rheumatol Online J. 2019. PMID: 31307476 Free PMC article.