Multicenter Study of Long-Term Outcomes and Quality of Life in PHACE Syndrome after Age 10.
Braun M, Frieden IJ, Siegel DH, George E, Hess CP, Fox CK, Chamlin SL, Drolet BA, Metry D, Pope E, Powell J, Holland K, Ulschmid C, Liang MG, Barry KK, Ho T, Cotter C, Baselga E, Bosquez D, Jain SN, Bui JK, Lara-Corrales I, Funk T, Small A, Baghoomian W, Yan AC, Treat JR, Hogrogian GS, Huang C, Haggstrom A, List M, McCuaig CC, Barrio V, Mancini AJ, Lawley LP, Grunnet-Satcher K, Horii KA, Newell B, Nopper A, Garzon MC, Scollan ME, Mathes EF.
Braun M, et al.
J Pediatr. 2024 Apr;267:113907. doi: 10.1016/j.jpeds.2024.113907. Epub 2024 Jan 12.
J Pediatr. 2024.
PMID: 38218370
Free article.
Neurocognitive manifestations were common including headaches/migraines (72.1%), participant-reported learning differences (45.1%), and need for individualized education plans (39.4%). ...Among these, 6/68 (8.8%) developed moyamoya vasculopathy or progressive stenoocclusio …
Neurocognitive manifestations were common including headaches/migraines (72.1%), participant-reported learning differences (45.1%), a …