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Registries for orphan drugs: generating evidence or marketing tools?
Hollak CEM, Sirrs S, van den Berg S, van der Wel V, Langeveld M, Dekker H, Lachmann R, de Visser SJ. Hollak CEM, et al. Among authors: van den berg s, van der wel v. Orphanet J Rare Dis. 2020 Sep 3;15(1):235. doi: 10.1186/s13023-020-01519-0. Orphanet J Rare Dis. 2020. PMID: 32883346 Free PMC article.
Cost-Based Price Calculation of Mexiletine for Nondystrophic Myotonia.
van den Berg S, van der Wel V, de Visser SJ, Stunnenberg BC, Timmers L, van der Ree MH, Postema PG, Hollak CEM. van den Berg S, et al. Among authors: van der ree mh, van der wel v. Value Health. 2021 Jul;24(7):925-929. doi: 10.1016/j.jval.2021.02.004. Epub 2021 Apr 10. Value Health. 2021. PMID: 34243835 Free article.
Drug Repurposing for Rare Diseases: A Role for Academia.
van den Berg S, de Visser S, Leufkens HGM, Hollak CEM. van den Berg S, et al. Front Pharmacol. 2021 Oct 20;12:746987. doi: 10.3389/fphar.2021.746987. eCollection 2021. Front Pharmacol. 2021. PMID: 34744726 Free PMC article.
Author Reply.
van den Berg S, de Visser SJ, Timmers L, Hollak CEM. van den Berg S, et al. Value Health. 2022 Jan;25(1):158-159. doi: 10.1016/j.jval.2021.08.005. Epub 2021 Sep 21. Value Health. 2022. PMID: 35031095 Free article. No abstract available.
Modified Delphi procedure-based expert consensus on endpoints for an international disease registry for Metachromatic Leukodystrophy: The European Metachromatic Leukodystrophy initiative (MLDi).
Schoenmakers DH, Beerepoot S, van den Berg S, Adang L, Bley A, Boelens JJ, Fumagalli F, Goettsch WG, Grønborg S, Groeschel S, van Hasselt PM, Hollak CEM, Lindemans C, Mochel F, Mol PGM, Sevin C, Zerem A, Schöls L, Wolf NI. Schoenmakers DH, et al. Among authors: van hasselt pm, van den berg s. Orphanet J Rare Dis. 2022 Feb 14;17(1):48. doi: 10.1186/s13023-022-02189-w. Orphanet J Rare Dis. 2022. PMID: 35164810 Free PMC article.
Access to medicines for rare diseases: A European regulatory roadmap for academia.
Rosenberg N, van den Berg S, Stolwijk NN, Jacobs BAW, Post HC, Pasmooij AMG, de Visser SJ, Hollak CEM. Rosenberg N, et al. Among authors: van den berg s. Front Pharmacol. 2023 Feb 28;14:1142351. doi: 10.3389/fphar.2023.1142351. eCollection 2023. Front Pharmacol. 2023. PMID: 36925633 Free PMC article.
[Medicine compounding in the pharmacy].
Polak Y, Jacobs BAW, van den Berg S, Colen-de Koning JCA, Hollak CEM, Kemper EM. Polak Y, et al. Among authors: van den berg s. Ned Tijdschr Geneeskd. 2023 Mar 16;167:D6806. Ned Tijdschr Geneeskd. 2023. PMID: 36928084 Dutch.
384 results