Good end-of-life care according to patients and their GPs

Br J Gen Pract. 2006 Jan;56(522):20-6.

Abstract

Background: Most patients prefer to die at home, where a GP provides end-of-life care. A few previous studies have been directed at the GPs' values on good end-of-life care, yet no study combined values of patients and their own GP.

Aim: To explore the aspects valued by both patients and GPs in end-of-life care at home, and to reflect upon the results in the context of future developments in primary care.

Design of study: Interviews with patients and their own GP.

Setting: Primary care in the Netherlands.

Method: Qualitative, semi-structured interviews with 20 GPs and 30 of their patients with a life expectancy of less than 6 months, and cancer, heart failure or chronic obstructive pulmonary disease as underlying disease.

Results: Patients and GPs had comparable perceptions of good end-of-life care. Patients and GPs identified four core items that they valued in end-of-life care: availability of the GP for home visits and after office-hours, medical competence and cooperation with other professionals, attention and continuity of care.

Conclusions: Future developments in the organisation of primary care such as the restriction of time for home visits, more part-time jobs and GP cooperatives responsible for care after office hours, may threaten valued aspects in end-of-life care.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Aged, 80 and over
  • Attitude of Health Personnel*
  • Continuity of Patient Care
  • Family Practice / organization & administration
  • Family Practice / standards*
  • Female
  • Humans
  • Interprofessional Relations
  • Male
  • Middle Aged
  • Netherlands
  • Patient Satisfaction*
  • Physician-Patient Relations
  • Terminal Care / standards*