Abstract
An Essay by A. Cecile Janssens and Peter Kraft discusses the limitations inherent in research involving collection of self-reported data by self-selected participants, and makes proposals for upfront communication of such limitations to study participants.
Publication types
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Research Support, Non-U.S. Gov't
MeSH terms
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Biomedical Research / ethics*
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Biomedical Research / methods*
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Data Collection / ethics
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Data Collection / methods
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Humans
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Informed Consent
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Internet*
Grants and funding
This study was supported by the Centre for Medical Systems Biology (CMSB) in the framework of the Netherlands Genomics Initiative (NGI). ACJW Janssens was sponsored by the VIDI grant of the Netherlands Organisation for Scientific Research (NWO). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.