Background: Although adult congenital heart disease (ACHD) patients encounter unique challenges related to social adaptation and mental health, only minimal research has been conducted on this functioning in Japanese ACHD patients. The aims of this study were to describe aspects of the psychosocial functioning of ACHD patients and to determine the psychosocial factors influencing their mental health.
Methods and results: Seventy-two ACHD patients (aged 18-39 years) and 86 control participants (aged 18-39 years) completed the 36-item Short Form Health Survey, a measure of mental health, and 4 self-report questionnaires measuring aspects of psychosocial functioning: Independent-Consciousness, Problem-solving, Locus of Control, and Self-esteem. Compared to the control group, ACHD patients had significantly lower scores for Independence, Problem-solving, and Self-esteem; whereas they had higher scores for Dependence on Parents. To examine the psychosocial factors influencing mental health, a structural equation model was used. The psychosocial factor Problem-solving was found to have the most direct influence on mental health. This factor was associated with Independence and Self-esteem.
Conclusions: ACHD patients in Japan have psychosocial difficulties, and the psychosocial factors influencing patients' mental health are social problem-solving, independence, and self-esteem. The patients have poorer abilities than the control group in all of these areas and hence, they run the risk of developing poor mental health.