When Children Become Adults: Should Biobanks Re-Contact?

Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden

doi:10.1371/journal.pmed.1001959

When Children Become Adults: Should Biobanks Re-Contact?

PLoS Med. 2016 Feb 16;13(2):e1001959. doi: 10.1371/journal.pmed.1001959. eCollection 2016 Feb.

Authors

Noor A A Giesbertz¹, Annelien L Bredenoord¹, Johannes J M van Delden¹

Affiliation

¹ Department of Medical Humanities Julius Center, University Medical Center Utrecht, Utrecht, The Netherlands.

Abstract

Noor Giesbertz and colleagues consider different re-contact policy designs that could be used by biobanks to obtain permission for the continued use of samples collected from children.

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Adult
Biological Specimen Banks / organization & administration*
Child
Confidentiality*
Humans
Informed Consent*
Parents / psychology

Grants and funding

The authors acknowledge funding from ZonMw – The Netherlands Organisation for Health Research and Development (ZonMw project no. 113203013), http://www.zonmw.nl/nl/projecten/project-detail/to-store-or-not-to-store-a-normative-analysis-of-consent-in-pediatric-biobanks/samenvatting/. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.