Head-injured survivors: caregivers and support groups

Abstract

The purposes of this study were to assess the needs of caregivers of head-injured survivors and the availability, use and helpfulness of support groups in meeting these needs. Demographic data on characteristics of the caregivers and of the head-injured survivor were also collected. The majority of the caregivers were mothers of head-injured males and provided care for an average of 6 years. Sixteen of the respondents did not attend a support group, mainly due to the unavailability of support groups in their area of residence. Support groups were most helpful in meeting educational and psychological needs of caregivers. The findings suggest the need for additional support groups, especially in smaller communities, for additional educational content in support groups and for respite beds.