Histologic follow-up of people with celiac disease on a gluten-free diet: slow and incomplete recovery

Am J Clin Pathol. 2002 Sep;118(3):459-63. doi: 10.1309/EVXT-851X-WHLC-RLX9.

Abstract

To assess histologic recovery in response to gluten withdrawal in celiac disease, 158 patients seen in our hospital during a 15-year period underwent follow-up small intestine biopsies (SIBs) within 2 years after starting a gluten-free diet; further SIBs were done if villous atrophy was present. A modified Marsh classification was used (IIIA, partial villous atrophy; IIIB, subtotal villous atrophy; IIIC, total villous atrophy). Of patients with Marsh IIIA, IIIB, or IIIC lesions, histologic remission was seen in 65.0% within 2 years, 85.3% within 5 years, and 89.9% in long-term follow-up. Eleven patients (7.0%) with persisting (partial) villous atrophy had symptoms and signs of malabsorption and were considered to have refractory celiac disease; 5 of them developed an enteropathy-associated T-cell lymphoma. Children recovered up to 95% within 2 years and 100% in the long-term. Histologic recovery in celiac disease after starting a gluten-free diet takes time and is incomplete or absent in a substantial subgroup of patients (10.1% villous atrophy after 5 years). Systematic follow-up of patients with celiac disease and the malabsorption syndrome and secondary complications is needed.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Atrophy / pathology
  • Biopsy
  • Celiac Disease* / complications
  • Celiac Disease* / diet therapy
  • Celiac Disease* / pathology
  • Child
  • Child, Preschool
  • Diet
  • Female
  • Follow-Up Studies
  • Glutens / administration & dosage*
  • Humans
  • Infant
  • Intestinal Mucosa / pathology*
  • Intestine, Small / pathology*
  • Lymphoma, T-Cell / complications
  • Lymphoma, T-Cell / pathology
  • Malabsorption Syndromes / complications
  • Malabsorption Syndromes / pathology
  • Male
  • Middle Aged
  • Remission Induction
  • Treatment Outcome

Substances

  • Glutens