Practical guidance on informed consent for pediatric participants in a biorepository

Affiliations

• ¹ Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
• ² Department of Communication, University of Cincinnati, Cincinnati, OH.
• ³ Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.
• ⁴ Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.
• ⁵ Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY.
• ⁶ Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, and Harvard Medical School, Boston, MA.
• ⁷ Department of Genetic and Genomics Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
• ⁸ Divisions of General Internal Medicine and Health Care and Policy Research and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
• ⁹ Genomic Medicine Institute, Geisinger Health System, Danville, PA.
• ¹⁰ Division of Genetics and Genomics, Boston Children's Hospital, Boston, MA.
• ¹¹ Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
• ¹² Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.