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Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures.
Support Care Cancer. 2010 Sep;18(9):1207-17. doi: 10.1007/s00520-009-0751-y. Epub 2009 Oct 16.
Support Care Cancer. 2010.
PMID: 19834745
Review.
Building a culture of engagement at a research centre for childhood disability.
Pozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter JW, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano RJ, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M.
Pozniak K, et al.
Res Involv Engagem. 2021 Nov 6;7(1):78. doi: 10.1186/s40900-021-00319-5.
Res Involv Engagem. 2021.
PMID: 34742354
Free PMC article.
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CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youth.
Gorter JW, Amaria K, Kovacs A, Rozenblum R, Thabane L, Galuppi B, Nguyen L, Strohm S, Mahlberg N, Via-Dufresne Ley A, Marelli A; CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Trial Study Group; CHILD-BRIGHT READYorNot(TM) Brain-Based Disabilities Trial Study Group.
Gorter JW, et al.
BMJ Open. 2021 Mar 26;11(3):e048756. doi: 10.1136/bmjopen-2021-048756.
BMJ Open. 2021.
PMID: 33771833
Free PMC article.
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Valuing tacit nursing knowledge during the COVID-19 pandemic.
Orr E, Jack SM, Campbell K, Strohm S.
Orr E, et al.
Public Health Nurs. 2023 Jan;40(1):178-181. doi: 10.1111/phn.13129. Epub 2022 Sep 5.
Public Health Nurs. 2023.
PMID: 36062958
Free PMC article.
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SUDEP: To discuss or not? Recommendations from bereaved relatives.
Ramachandran Nair R, Jack SM, Strohm S.
Ramachandran Nair R, et al.
Epilepsy Behav. 2016 Mar;56:20-5. doi: 10.1016/j.yebeh.2015.12.027. Epub 2016 Jan 29.
Epilepsy Behav. 2016.
PMID: 26827297
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SUDEP: Living with the knowledge.
Whitney R, Strohm S, Jeffs T, Jones KC, Jack SM, RamachandranNair R.
Whitney R, et al.
Epilepsy Res. 2023 Aug;194:107177. doi: 10.1016/j.eplepsyres.2023.107177. Epub 2023 Jun 3.
Epilepsy Res. 2023.
PMID: 37295320
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