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The World Federation of Hemophilia World Bleeding Disorders Registry: insights from the first 10,000 patients.
Coffin D, Gouider E, Konkle B, Hermans C, Lambert C, Diop S, Ayoub E, Tootoonchian E, Youttananukorn T, Dakik P, Pereira T, Iorio A, Pierce GF; World Bleeding Disorders Registry Participating Investigators. Coffin D, et al. Res Pract Thromb Haemost. 2023 Nov 20;7(8):102264. doi: 10.1016/j.rpth.2023.102264. eCollection 2023 Nov. Res Pract Thromb Haemost. 2023. PMID: 38193052 Free PMC article.
Landmark endorsement of a global registry: The European Medicines Agency (EMA) Committee for Medicinal Products for Human Use (CHMP), publicly endorses World Federation of Hemophilia Gene Therapy Registry as global standard.
Konkle BA, Peyvandi F, Coffin D, Naccache M, Youttananukorn T, Pierce GF; WFH Gene Therapy Registry Scientific Advisory Board. Konkle BA, et al. Among authors: coffin d. Haemophilia. 2024 Jan;30(1):232-235. doi: 10.1111/hae.14912. Epub 2023 Dec 18. Haemophilia. 2024. PMID: 38111095 No abstract available.
Von Willebrand Disease: Gaining a global perspective.
O'Sullivan JM, Tootoonchian E, Ziemele B, Makris M, Federici AB, Khayat Djambas C, El Ekiaby M, Rotellini D, Sidonio RF, Iorio A, Coffin D, Pierce GF, Stonebraker J, James PD, Lavin M. O'Sullivan JM, et al. Among authors: coffin d. Haemophilia. 2023 Jul;29(4):1104-1112. doi: 10.1111/hae.14804. Epub 2023 May 22. Haemophilia. 2023. PMID: 37216656
Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set.
van Balen EC, O'Mahony B, Cnossen MH, Dolan G, Blanchette VS, Fischer K, Gue D, O'Hara J, Iorio A, Jackson S, Konkle BA, Nugent DJ, Coffin D, Skinner MW, Smit C, Srivastava A, van Eenennaam F, van der Bom JG, Gouw SC. van Balen EC, et al. Among authors: coffin d. Res Pract Thromb Haemost. 2021 Mar 6;5(4):e12488. doi: 10.1002/rth2.12488. eCollection 2021 May. Res Pract Thromb Haemost. 2021. PMID: 34027286 Free PMC article.
144 results