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Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol.
van Kalsbeek RJ, Korevaar JC, Rijken M, Haupt R, Muraca M, Kepák T, Kepakova K, Blondeel A, Boes S, Frederiksen LE, Essiaf S, Winther JF, Hermens RPMG, Kienesberger A, Loonen JJ, Michel G, Mulder RL, O'Brien KB, van der Pal HJH, Pluijm SMF, Roser K, Skinner R, Renard M, Uyttebroeck A, Follin C, Hjorth L, Kremer LCM. van Kalsbeek RJ, et al. Among authors: kienesberger a. BMJ Open. 2022 Nov 17;12(11):e063134. doi: 10.1136/bmjopen-2022-063134. BMJ Open. 2022. PMID: 36396317 Free PMC article.
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.
de Beijer IAE, van den Oever SR, Charalambous E, Cangioli G, Balaguer J, Bardi E, Alfes M, Cañete Nieto A, Correcher M, Pinto da Costa T, Degelsegger-Márquez A, Düster V, Filbert AL, Grabow D, Gredinger G, Gsell H, Haupt R, van Helvoirt M, Ladenstein R, Langer T, Laschkolnig A, Muraca M, Pluijm SMF, Rascon J, Schreier G, Tomášikova Z, Trauner F, Trinkūnas J, Trunner K, Uyttebroeck A, Kremer LCM, van der Pal HJH, Chronaki C; PanCareSurPass Consortium. de Beijer IAE, et al. J Med Internet Res. 2024 May 2;26:e49910. doi: 10.2196/49910. J Med Internet Res. 2024. PMID: 38696248 Free PMC article.
The organization of care in pediatric radiotherapy across SIOP Europe affiliated centers: A multicenter survey in the framework of the 'Joint Action on Rare Cancers' project.
Janssens GO, Timmermann B, Laprie A, Mandeville H, Padovani L, Chargari C, Kearns P, Kozhaeva O, Kameric L, Kienesberger A, van Rossum PSN, Boterberg T, Lievens Y, Vassal G. Janssens GO, et al. Among authors: kienesberger a. Radiother Oncol. 2024 Feb;191:110075. doi: 10.1016/j.radonc.2023.110075. Epub 2023 Dec 28. Radiother Oncol. 2024. PMID: 38159681 Free article.
Person-centred online lifestyle coaching in childhood, adolescent, and young adult cancer survivors: protocol of the multicentre PanCareFollowUp lifestyle intervention feasibility study.
Bouwman E, Hermens RPMG, Brown MC, Araújo-Soares V, Blijlevens NMA, Kepak T, Kepakova K, Kremer LCM, van den Oever SR, van der Pal HJH, Skinner R, Pluijm SMF, Loonen JJ; PanCareFollowUp Consortium. Bouwman E, et al. Pilot Feasibility Stud. 2022 Dec 16;8(1):260. doi: 10.1186/s40814-022-01221-x. Pilot Feasibility Stud. 2022. PMID: 36527164 Free PMC article.
Scaling up and implementing the digital Survivorship Passport tool in routine clinical care - The European multidisciplinary PanCareSurPass project.
Filbert AL, Kremer L, Ladenstein R, Chronaki C, Degelsegger-Márquez A, van der Pal H, Bardi E, Uyttebroeck A, Langer T, Muraca M, Nieto AC, Rascon J, Bagnasco F, Beyer S, Te Dorsthorst J, Essiaf S, Galan AO, Kienesberger A, O'Brien K, Palau MC, Pluijm SMF, di Profio S, Saraceno D, Schneider C, Schreier G, Trinkūnas J, Zamberlan I, Grabow D, Haupt R; PanCareSurPass consortium. Filbert AL, et al. Among authors: kienesberger a. Eur J Cancer. 2024 May;202:114029. doi: 10.1016/j.ejca.2024.114029. Epub 2024 Mar 19. Eur J Cancer. 2024. PMID: 38513384
Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study.
van den Oever SR, de Beijer IAE, Kremer LCM, Alfes M, Balaguer J, Bardi E, Nieto AC, Cangioli G, Charalambous E, Chronaki C, Costa T, Degelsegger A, Düster V, Filbert AL, Grabow D, Gredinger G, Gsell H, Haupt R, van Helvoirt M, Ladenstein R, Langer T, Laschkolnig A, Muraca M, Rascon J, Schreier G, Tomasikova Z, Tormo MT, Trinkunas J, Trollip J, Trunner K, Uyttebroeck A, van der Pal HJH, Pluijm SMF; PanCareSurPass consortium. van den Oever SR, et al. J Cancer Surviv. 2024 Jun;18(3):928-940. doi: 10.1007/s11764-023-01335-y. Epub 2023 Feb 20. J Cancer Surviv. 2024. PMID: 36808389
European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline.
de Beijer IAE, Skinner R, Haupt R, Grabow D, Bardi E, Beccaria A, Nieto AC, Essiaf S, Filbert AL, Gsell H, Kienesberger A, Langer T, McColgan P, Muraca M, Rascon J, Tallone R, Tomasikova Z, Uyttebroeck A, Kremer LCM, van der Pal HJH, Mulder RL; PanCareSurPass consortium. de Beijer IAE, et al. Among authors: kienesberger a. J Cancer Surviv. 2023 Dec 4. doi: 10.1007/s11764-023-01493-z. Online ahead of print. J Cancer Surviv. 2023. PMID: 38048011
Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey.
Bozovic Spasojevic I, Ferrari A, De Munter J, Gamble A, Konsoulova-Kirova A, Rizvi K, Schneider C, Balsat M, Castleton A, Gofti-Laroche L, Kienesberger A, Timmermann B, Vormoor J, Saloustros E, Stark DP. Bozovic Spasojevic I, et al. Among authors: kienesberger a. Tumori. 2023 Dec;109(6):546-554. doi: 10.1177/03008916231183477. Epub 2023 Jul 24. Tumori. 2023. PMID: 37486101
27 results