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What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy.
Qual Life Res. 2024 Feb;33(2):519-528. doi: 10.1007/s11136-023-03543-6. Epub 2023 Dec 8.
Qual Life Res. 2024.
PMID: 38064015
Free PMC article.
Caregiver assessment of quality of life in individuals with genetic developmental and epileptic encephalopathies.
Cohen SR, Helbig I, Kaufman MC, Schust Myers L, Conway L, Helbig KL.
Cohen SR, et al. Among authors: schust myers l.
Dev Med Child Neurol. 2022 Aug;64(8):957-964. doi: 10.1111/dmcn.15187. Epub 2022 Feb 28.
Dev Med Child Neurol. 2022.
PMID: 35229292
Free PMC article.
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