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2011 2
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Page 1
Clinical trajectory of hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders in older adults.
Anderson LK, Lane KR. Anderson LK, et al. J Am Assoc Nurse Pract. 2023 Oct 1;35(10):605-612. doi: 10.1097/JXX.0000000000000900. J Am Assoc Nurse Pract. 2023. PMID: 37261967 Review.
BACKGROUND: Research on hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder (hEDS/HSD) has described its natural history and clinical course in children, adolescents, and young to middle-aged adults. ...Studies also noted prolonged diagnosis delays and l …
BACKGROUND: Research on hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder (hEDS/HSD) has described its natural history …
Suicidal Behaviors in Women With the Hypermobile Ehlers-Danlos Syndrome.
Baeza-Velasco C, Hamonet C, Montalescot L, Courtet P. Baeza-Velasco C, et al. Arch Suicide Res. 2022 Jul-Sep;26(3):1314-1326. doi: 10.1080/13811118.2021.1885538. Epub 2021 Feb 17. Arch Suicide Res. 2022. PMID: 33596399
CONCLUSIONS: Consistent with previous reports, these data highlight the high frequency of suicidal behaviors in hEDS patients as well as the importance to explore psychopathology in those affected in order to identify vulnerable individuals and provide specific support.HIGHLIGHTS …
CONCLUSIONS: Consistent with previous reports, these data highlight the high frequency of suicidal behaviors in hEDS patients as well as the …
Are patients with hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder so different?
Aubry-Rozier B, Schwitzguebel A, Valerio F, Tanniger J, Paquier C, Berna C, Hügle T, Benaim C. Aubry-Rozier B, et al. Rheumatol Int. 2021 Oct;41(10):1785-1794. doi: 10.1007/s00296-021-04968-3. Epub 2021 Aug 16. Rheumatol Int. 2021. PMID: 34398260 Free PMC article.
On multivariable analysis, only family history of hypermobility predicted (favorable) outcome (p = 0.01). hEDS and HDS patients showed similar disease severity score except for pain, motricity problems and bleeding, and similar spectrum of extra-articular manifestations. . …
On multivariable analysis, only family history of hypermobility predicted (favorable) outcome (p = 0.01). hEDS and HDS patients showe …
Comprehensive Assessment of Nutrition and Dietary Influences in Hypermobile Ehlers-Danlos Syndrome-A Cross-Sectional Study.
Topan R, Pandya S, Williams S, Ruffle JK, Zarate-Lopez N, Aziz Q, Fikree A. Topan R, et al. Am J Gastroenterol. 2024 Apr 1;119(4):727-738. doi: 10.14309/ajg.0000000000002586. Epub 2024 Jan 16. Am J Gastroenterol. 2024. PMID: 37970870
Approximately 31.7% of those who altered their diet required nutrition support. The strongest predictor of requiring nutrition support was a positive screen for ARFID, specifically fear of eating (OR: 4.97, 95% CI: 2.09-11.8, P < 0.001). ...
Approximately 31.7% of those who altered their diet required nutrition support. The strongest predictor of requiring nutrition suppor …
Re-writing the natural history of pain and related symptoms in the joint hypermobility syndrome/Ehlers-Danlos syndrome, hypermobility type.
Castori M, Morlino S, Celletti C, Ghibellini G, Bruschini M, Grammatico P, Blundo C, Camerota F. Castori M, et al. Am J Med Genet A. 2013 Dec;161A(12):2989-3004. doi: 10.1002/ajmg.a.36315. Epub 2013 Nov 6. Am J Med Genet A. 2013. PMID: 24254847 Review.
In this manuscript the fragmented knowledge on pain, fatigue, and headache in JHS/EDS is presented with review of the available published information and a description of the clinical course by symptoms, on the basis of authors' experience. Pathogenic mechanisms are sugges …
In this manuscript the fragmented knowledge on pain, fatigue, and headache in JHS/EDS is presented with review of the available published in …
Joint Hypermobility Syndrome: Recognizing a Commonly Overlooked Cause of Chronic Pain.
Kumar B, Lenert P. Kumar B, et al. Am J Med. 2017 Jun;130(6):640-647. doi: 10.1016/j.amjmed.2017.02.013. Epub 2017 Mar 10. Am J Med. 2017. PMID: 28286166 Review.
We review the literature regarding the pathophysiology, diagnosis, treatment options, and prognosis of joint hypermobility syndrome, and advocate for primary care physicians to consider it in the differential diagnosis of patients with chronic pain....
We review the literature regarding the pathophysiology, diagnosis, treatment options, and prognosis of joint hypermobility syndrome, …
Orthostatic intolerance and fatigue in the hypermobility type of Ehlers-Danlos Syndrome.
De Wandele I, Rombaut L, De Backer T, Peersman W, Da Silva H, De Mits S, De Paepe A, Calders P, Malfait F. De Wandele I, et al. Rheumatology (Oxford). 2016 Aug;55(8):1412-20. doi: 10.1093/rheumatology/kew032. Epub 2016 Apr 18. Rheumatology (Oxford). 2016. PMID: 27094596
OBJECTIVE: To investigate whether orthostatic intolerance (OI) is a significant predictor for fatigue in Ehlers-Danlos Syndrome, hypermobility type (EDS-HT). ...
OBJECTIVE: To investigate whether orthostatic intolerance (OI) is a significant predictor for fatigue in Ehlers-Danlos Syndrome, hype …
A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice.
Feldman ECH, Homan KJ, Williams SE, Ting TV, Goldschneider KR, Kashikar-Zuck S. Feldman ECH, et al. Pediatr Rheumatol Online J. 2023 Oct 16;21(1):121. doi: 10.1186/s12969-023-00908-6. Pediatr Rheumatol Online J. 2023. PMID: 37845704 Free PMC article. Review.
This review suggests that ambiguities surrounding the diagnosis of hEDS, symptom course, and treatment recommendations, along with misdiagnosis, perceived dismissal of symptoms, or attribution of symptoms to mental health concerns might increase risk for IU and related dis …
This review suggests that ambiguities surrounding the diagnosis of hEDS, symptom course, and treatment recommendations, along with mi …
Factors affecting quality of life in children and adolescents with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders.
Mu W, Muriello M, Clemens JL, Wang Y, Smith CH, Tran PT, Rowe PC, Francomano CA, Kline AD, Bodurtha J. Mu W, et al. Am J Med Genet A. 2019 Apr;179(4):561-569. doi: 10.1002/ajmg.a.61055. Epub 2019 Jan 31. Am J Med Genet A. 2019. PMID: 30703284 Free PMC article.
Using multiple regression, general fatigue and pain scores were the best predictors of the PedsQL total score. Additionally, presence of any psychiatric diagnosis was correlated with a lower PedsQL score. ...
Using multiple regression, general fatigue and pain scores were the best predictors of the PedsQL total score. Additionally, presence …
27 results