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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni D, Bentzen HB, Budin-Ljøsne I, Bygrave LA, Bell J, Dove ES, Fuchsberger C, Hveem K, Mayrhofer MT, Meraviglia V, O'Brien DR, Pattaro C, Pramstaller PP, Rakic V, Rossini A, Shabani M, Svantesson DJB, Tomasi M, Ursin L, Wjst M, Kaye J. Mascalzoni D, et al. Among authors: bentzen hb. Ann Intern Med. 2019 Mar 5;170(5):332-334. doi: 10.7326/M18-2854. Epub 2019 Feb 12. Ann Intern Med. 2019. PMID: 30776795 Review. No abstract available.
Genome sequencing in research requires a new approach to consent.
Budin-Ljøsne I, Bentzen HB, Solbakk JH, Myklebost O. Budin-Ljøsne I, et al. Among authors: bentzen hb. Tidsskr Nor Laegeforen. 2015 Dec 1;135(22):2031-2. doi: 10.4045/tidsskr.15.0944. eCollection 2015 Dec 1. Tidsskr Nor Laegeforen. 2015. PMID: 26627287 Free article. English, Norwegian. No abstract available.
Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?
Budin-Ljøsne I, Mascalzoni D, Soini S, Machado H, Kaye J, Bentzen HB, Rial-Sebbag E, D'Abramo F, Witt M, Schamps G, Katić V, Krajnovic D, Harris JR. Budin-Ljøsne I, et al. Among authors: bentzen hb. Biopreserv Biobank. 2016 Jun;14(3):241-8. doi: 10.1089/bio.2015.0115. Epub 2016 Apr 15. Biopreserv Biobank. 2016. PMID: 27082461 Free PMC article.
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Budin-Ljøsne I, Teare HJ, Kaye J, Beck S, Bentzen HB, Caenazzo L, Collett C, D'Abramo F, Felzmann H, Finlay T, Javaid MK, Jones E, Katić V, Simpson A, Mascalzoni D. Budin-Ljøsne I, et al. Among authors: bentzen hb. BMC Med Ethics. 2017 Jan 25;18(1):4. doi: 10.1186/s12910-016-0162-9. BMC Med Ethics. 2017. PMID: 28122615 Free PMC article.
The challenges of the expanded availability of genomic information: an agenda-setting paper.
Borry P, Bentzen HB, Budin-Ljøsne I, Cornel MC, Howard HC, Feeney O, Jackson L, Mascalzoni D, Mendes Á, Peterlin B, Riso B, Shabani M, Skirton H, Sterckx S, Vears D, Wjst M, Felzmann H. Borry P, et al. Among authors: bentzen hb. J Community Genet. 2018 Apr;9(2):103-116. doi: 10.1007/s12687-017-0331-7. Epub 2017 Sep 26. J Community Genet. 2018. PMID: 28952070 Free PMC article.
Consent insufficient for data release.
Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Nicol D, et al. Among authors: bentzen hb. Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. Science. 2019. PMID: 31048483 No abstract available.
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Ursin L, Durnová A, Leitsalu L, Smith K, Casati S, Lavitrano M, Mascalzoni D, Boeckhout M, Mayrhofer MT. Goisauf M, et al. Among authors: bentzen hb. PLoS One. 2019 Sep 18;14(9):e0221496. doi: 10.1371/journal.pone.0221496. eCollection 2019. PLoS One. 2019. PMID: 31532777 Free PMC article.
Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Ursin L, Durnová A, Leitsalu L, Smith K, Casati S, Lavitrano M, Mascalzoni D, Boeckhout M, Mayrhofer MT. Goisauf M, et al. Among authors: bentzen hb. PLoS One. 2019 Dec 2;14(12):e0226149. doi: 10.1371/journal.pone.0226149. eCollection 2019. PLoS One. 2019. PMID: 31790510 Free PMC article.
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Among authors: bentzen hb. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.
28 results