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Privacy rights of human research participants in South Africa must be taken seriously.
Thaldar DW, Townsend B, Staunton C, Adams R, Botes M, Dove ES, Horn L, Labuschaigne M, Loots G, Mahomed S, Olckers A, Pepper MS, Pope A, Ramsay M, Ni Loideain N, De Vries J. Thaldar DW, et al. Among authors: dove es. S Afr Med J. 2020 Feb 26;110(3):175-176. doi: 10.7196/SAMJ.2020.v110i3.14450. S Afr Med J. 2020. PMID: 32657692
Consent insufficient for data release.
Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Nicol D, et al. Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. Science. 2019. PMID: 31048483 No abstract available.
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Among authors: dove es. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.
The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination.
Joly Y, Huerne K, Arych M, Bombard Y, De Paor A, Dove ES, Granados Moreno P, Ho CWL, Ho CH, Van Hoyweghen I, Kim H, Lebret A, Minssen T, Ó Cathaoir K, Prince AER, Nair APS, Otlowski M, Pepper MS, Sladek R, Song L, Voigt TH, Zawati MH, Dalpé G; Genetic Discrimination Observatory (GDO). Joly Y, et al. Among authors: dove es. Trends Genet. 2021 Nov;37(11):951-954. doi: 10.1016/j.tig.2021.08.004. Epub 2021 Sep 6. Trends Genet. 2021. PMID: 34503867
RESEARCH ETHICS. Ethics review for international data-intensive research.
Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM. Dove ES, et al. Science. 2016 Mar 25;351(6280):1399-400. doi: 10.1126/science.aad5269. Science. 2016. PMID: 27013718 Free PMC article. No abstract available.
Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.
Murtagh MJ, Machirori M, Gaff CL, Blell MT, de Vries J, Doerr M, Dove ES, Duncanson A, Hastings Ward J, Hendricks-Sturrup R, Ho CWL, Johns A, Joly Y, Kato K, Katsui K, Kumuthini J, Maleady-Crowe F, Middleton A, Milne R, Minion JT, Matshaba M, Mulrine S, Patch C, Ryan R, Viney W. Murtagh MJ, et al. Among authors: dove es. Wellcome Open Res. 2021 Nov 15;6:311. doi: 10.12688/wellcomeopenres.17233.1. eCollection 2021. Wellcome Open Res. 2021. PMID: 35592835 Free PMC article.
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