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Page 1
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Nordlund J, Tao L, Aguila K, Bourgeault A, Konrad V, Sauvé M, Connolly K, Henry RS, Østbø N, Levis AW, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Hudson M, Wurz A, Culos-Reed SN, Platt RW, Benedetti A; SPIN-SSLED Support Group Leader Advisory Team. Thombs BD, et al. Orphanet J Rare Dis. 2022 Oct 28;17(1):396. doi: 10.1186/s13023-022-02552-x. Orphanet J Rare Dis. 2022. PMID: 36307891 Free PMC article. Clinical Trial.
Reasons for non-participation in scleroderma support groups.
Delisle VC, Gumuchian ST, Pelaez S, Malcarne VL, El-Baalbaki G, Körner A, Hudson M, Baron M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Delisle VC, et al. Clin Exp Rheumatol. 2016 Sep-Oct;34 Suppl 100(5):56-62. Epub 2016 Feb 25. Clin Exp Rheumatol. 2016. PMID: 26950221
Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-Sectional Study.
Gumuchian ST, Delisle VC, Peláez S, Malcarne VL, El-Baalbaki G, Kwakkenbos L, Jewett LR, Carrier ME, Pépin M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Gumuchian ST, et al. Arthritis Care Res (Hoboken). 2018 Feb;70(2):275-283. doi: 10.1002/acr.23220. Epub 2018 Jan 11. Arthritis Care Res (Hoboken). 2018. PMID: 28217869
Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program.
Thombs BD, Aguila K, Dyas L, Carrier ME, Fedoruk C, Horwood L, Cañedo-Ayala M, Sauvé M, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Peláez S, Connolly K, Hudson M, Platt RW; SPIN-SSLED Support Group Advisory Team. Thombs BD, et al. Trials. 2019 Dec 12;20(1):717. doi: 10.1186/s13063-019-3747-z. Trials. 2019. PMID: 31831073 Free PMC article.