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Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS. Kraft SA, et al. Among authors: porter km. Genet Med. 2020 Jun;22(6):1094-1101. doi: 10.1038/s41436-020-0763-z. Epub 2020 Feb 24. Genet Med. 2020. PMID: 32089547 Free PMC article.
Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.
Kraft SA, Porter KM, Duenas DM, Guerra C, Joseph G, Lee SS, Shipman KJ, Allen J, Eubanks D, Kauffman TL, Lindberg NM, Anderson K, Zepp JM, Gilmore MJ, Mittendorf KF, Shuster E, Muessig KR, Arnold B, Goddard KAB, Wilfond BS. Kraft SA, et al. Among authors: porter km. AJOB Empir Bioeth. 2021 Jan-Mar;12(1):1-11. doi: 10.1080/23294515.2020.1823907. Epub 2020 Sep 26. AJOB Empir Bioeth. 2021. PMID: 32981477 Free PMC article.
Creating a Research Ethics Consultation Service: Issues to Consider.
Taylor HA, Porter KM, Paquette ET, McCormick JB, Tumilty E, Arnold JF, Spector-Bagdady K, Danis M, Brandt D, Shah J, Wilfond BS, Lee LM. Taylor HA, et al. Among authors: porter km. Ethics Hum Res. 2021 Sep;43(5):18-25. doi: 10.1002/eahr.500101. Ethics Hum Res. 2021. PMID: 34496156 Free PMC article.
151 results