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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni D, Bentzen HB, Budin-Ljøsne I, Bygrave LA, Bell J, Dove ES, Fuchsberger C, Hveem K, Mayrhofer MT, Meraviglia V, O'Brien DR, Pattaro C, Pramstaller PP, Rakic V, Rossini A, Shabani M, Svantesson DJB, Tomasi M, Ursin L, Wjst M, Kaye J. Mascalzoni D, et al. Among authors: shabani m. Ann Intern Med. 2019 Mar 5;170(5):332-334. doi: 10.7326/M18-2854. Epub 2019 Feb 12. Ann Intern Med. 2019. PMID: 30776795 Review. No abstract available.
RESEARCH ETHICS. Ethics review for international data-intensive research.
Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM. Dove ES, et al. Among authors: shabani m. Science. 2016 Mar 25;351(6280):1399-400. doi: 10.1126/science.aad5269. Science. 2016. PMID: 27013718 Free PMC article. No abstract available.
The challenges of the expanded availability of genomic information: an agenda-setting paper.
Borry P, Bentzen HB, Budin-Ljøsne I, Cornel MC, Howard HC, Feeney O, Jackson L, Mascalzoni D, Mendes Á, Peterlin B, Riso B, Shabani M, Skirton H, Sterckx S, Vears D, Wjst M, Felzmann H. Borry P, et al. Among authors: shabani m. J Community Genet. 2018 Apr;9(2):103-116. doi: 10.1007/s12687-017-0331-7. Epub 2017 Sep 26. J Community Genet. 2018. PMID: 28952070 Free PMC article.
Consent insufficient for data release.
Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Nicol D, et al. Among authors: shabani m. Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. Science. 2019. PMID: 31048483 No abstract available.
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Among authors: shabani m. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.
Ethics review of big data research: What should stay and what should be reformed?
Ferretti A, Ienca M, Sheehan M, Blasimme A, Dove ES, Farsides B, Friesen P, Kahn J, Karlen W, Kleist P, Liao SM, Nebeker C, Samuel G, Shabani M, Rivas Velarde M, Vayena E. Ferretti A, et al. Among authors: shabani m. BMC Med Ethics. 2021 Apr 30;22(1):51. doi: 10.1186/s12910-021-00616-4. BMC Med Ethics. 2021. PMID: 33931049 Free PMC article. Review.
Ethical and social reflections on the proposed European Health Data Space.
Staunton C, Shabani M, Mascalzoni D, Mežinska S, Slokenberga S. Staunton C, et al. Among authors: shabani m. Eur J Hum Genet. 2024 May;32(5):498-505. doi: 10.1038/s41431-024-01543-9. Epub 2024 Feb 14. Eur J Hum Genet. 2024. PMID: 38355959 Free PMC article. Review.
513 results