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Parental permission for pilot newborn screening research: guidelines from the NBSTRN.
Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B; Bioethics and Legal Work Group of the Newborn Screening Translational Research Network. Botkin JR, et al. Among authors: tarini b. Pediatrics. 2014 Feb;133(2):e410-7. doi: 10.1542/peds.2013-2271. Epub 2014 Jan 6. Pediatrics. 2014. PMID: 24394680 Free PMC article.
Ethical issues with newborn screening in the genomics era.
Tarini BA, Goldenberg AJ. Tarini BA, et al. Annu Rev Genomics Hum Genet. 2012;13:381-93. doi: 10.1146/annurev-genom-090711-163741. Epub 2012 May 1. Annu Rev Genomics Hum Genet. 2012. PMID: 22559326 Free PMC article. Review.
Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial.
Rothwell E, Johnson E, Wong B, Goldenberg A, Tarini BA, Riches N, Stark LA, Pries C, Langbo C, Langen E, Botkin J. Rothwell E, et al. Among authors: tarini ba. J Empir Res Hum Res Ethics. 2020 Oct;15(4):252-260. doi: 10.1177/1556264620913455. Epub 2020 Apr 3. J Empir Res Hum Res Ethics. 2020. PMID: 32242760 Free PMC article. Clinical Trial.
Parents' interest in whole-genome sequencing of newborns.
Goldenberg AJ, Dodson DS, Davis MM, Tarini BA. Goldenberg AJ, et al. Genet Med. 2014 Jan;16(1):78-84. doi: 10.1038/gim.2013.76. Epub 2013 Jun 6. Genet Med. 2014. PMID: 23743552 Free PMC article.
91 results