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An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.
Joseph G, Leo MC, Riddle L, Guerra C, Amendola LM, Gilmore MJ, Rolf BA, Dorschner MO, Zepp J, Biesecker BB, Caruncho M, Hunter JE, Keast E, Lewis HS, Duenas D, Kauffman T, Bulkley JE, Anderson KP, Jarvik GP, Goddard KAB, Wilfond BS; CHARM Study Team. Joseph G, et al. Among authors: zepp j. Genet Med. 2022 Nov;24(11):2228-2239. doi: 10.1016/j.gim.2022.07.025. Epub 2022 Sep 2. Genet Med. 2022. PMID: 36053287 Free article. Clinical Trial.
Stakeholder perspectives on implementing a universal Lynch syndrome screening program: a qualitative study of early barriers and facilitators.
Schneider JL, Davis J, Kauffman TL, Reiss JA, McGinley C, Arnold K, Zepp J, Gilmore M, Muessig KR, Syngal S, Acheson L, Wiesner GL, Peterson SK, Goddard KA. Schneider JL, et al. Among authors: zepp j. Genet Med. 2016 Feb;18(2):152-61. doi: 10.1038/gim.2015.43. Epub 2015 Apr 16. Genet Med. 2016. PMID: 25880440 Free PMC article.
Universal screening for Lynch syndrome among patients with colorectal cancer: patient perspectives on screening and sharing results with at-risk relatives.
Hunter JE, Arnold KA, Cook JE, Zepp J, Gilmore MJ, Rope AF, Davis JV, Bergen KM, Esterberg E, Muessig KR, Peterson SK, Syngal S, Acheson L, Wiesner G, Reiss J, Goddard KAB. Hunter JE, et al. Among authors: zepp j. Fam Cancer. 2017 Jul;16(3):377-387. doi: 10.1007/s10689-017-9972-2. Fam Cancer. 2017. PMID: 28176204 Free PMC article.
Implementation of a Systematic Tumor Screening Program for Lynch Syndrome in an Integrated Health Care Setting.
Clarke EV, Muessig KR, Zepp J, Hunter JE, Syngal S, Acheson LS, Wiesner GL, Peterson SK, Bergen KM, Shuster E, Davis JV, Schneider JL, Kauffman TL, Gilmore MJ, Reiss JA, Rope AF, Cook JE, Goddard KAB. Clarke EV, et al. Among authors: zepp j. Fam Cancer. 2019 Jul;18(3):317-325. doi: 10.1007/s10689-019-00123-x. Fam Cancer. 2019. PMID: 30729418 Free PMC article. Clinical Trial.
Recommended care and care adherence following a diagnosis of Lynch syndrome: a mixed-methods study.
Mittendorf KF, Hunter JE, Schneider JL, Shuster E, Rope AF, Zepp J, Gilmore MJ, Muessig KR, Davis JV, Kauffman TL, Bergen KM, Wiesner GL, Acheson LS, Peterson SK, Syngal S, Reiss JA, Goddard KAB. Mittendorf KF, et al. Among authors: zepp j. Hered Cancer Clin Pract. 2019 Dec 16;17:31. doi: 10.1186/s13053-019-0130-8. eCollection 2019. Hered Cancer Clin Pract. 2019. PMID: 31890059 Free PMC article.
A review and definition of 'usual care' in genetic counseling trials to standardize use in research.
Biesecker BB, Lillie SE, Amendola LM, Donohue KE, East KM, Foreman AKM, Gilmore MJ, Greve V, Liangolou B, O'Daniel JM, Odgis JA, Rego S, Rolf B, Scollon S, Suckiel SA, Zepp J, Joseph G. Biesecker BB, et al. Among authors: zepp j. J Genet Couns. 2021 Feb;30(1):42-50. doi: 10.1002/jgc4.1363. Epub 2020 Dec 5. J Genet Couns. 2021. PMID: 33278053 Free PMC article. Review.
Laboratory-related outcomes from integrating an accessible delivery model for hereditary cancer risk assessment and genetic testing in populations with barriers to access.
Amendola LM, Shuster E, Leo MC, Dorschner MO, Rolf BA, Shirts BH, Gilmore MJ, Okuyama S, Zepp JM, Kauffman TL, Mittendorf KF, Bellcross C, Jenkins CL, Joseph G, Riddle L, Syngal S, Ukaegbu C, Goddard KAB, Wilfond BS, Jarvik GP; CHARM Study. Amendola LM, et al. Among authors: zepp jm. Genet Med. 2022 Jun;24(6):1196-1205. doi: 10.1016/j.gim.2022.02.006. Epub 2022 Mar 16. Genet Med. 2022. PMID: 35305866 Free article.
70 results